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@jonifranklin

I was very quickly diagnosed with egpa last November and am currently taking prednisone and doing Cyclophosphamide and am reducing the prednisone its now at 20mg which still makes it hard to sleep, I have bad ( but better than it was) neuropathy in my thumb and next 2 fingers which is the worst part for me. I take steroid inhaler and nose spray as well as a raft of other things, my rheumatologist is good but he confuses he 😢 I have 2 more chemo sessions and then the rheumatologist will decide what drugs to take probably in late Feb Joni from New Zealand

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Replies to "I was very quickly diagnosed with egpa last November and am currently taking prednisone and doing..."

Hi Joni, I live in Auckland and was diagnosed in 2016. I went through the same protocol. I am doing well. Managed to VERY SLOWLY get off prednisone and am now on low dose methotrexate. I have two numb legs from the knees down to the toes and a numb left hand. Not ideal but better than my Dad who died at 61 of the EGPA as they had no options to treat other than prednisone which didnt work well for him. We are lucky we have the 'Gold Standard' - Cyclophosphamide with high dose prednisone. Please contact me if you need any support Cheers, Leonie