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Livedoid vasculopathy

Blood Cancers & Disorders | Last Active: 8 hours ago | Replies (267)

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@victorarrow

Hi, imamom
I’m so sorry to hear about your daughter. It’s a devastating situation to be in, especially at her age. To answer a couple of the questions and to give some more insight, yes, it is an eastern medicine doctor that told me to test for uric acid. I had seen maybe a dozen different doctors around the US before and the only thing they could suggest was different types of oral or injection medicine. I am Indian, and the last resort we really had was to go to a naturopathic clinic in India. One of the doctors there had seen something like this before and recognized that you were acid may have been the cause so decided to test for it. I may be getting the numbers wrong but I think the normal level is 7 and mine was closer to 14. I don’t eat red meat because of my culture, but I did eat a lot of poultry, especially fried and not so healthy foods. I went on an almost purely natural diet for about six months before starting to introduce more lenient foods into my diet again. and by that I mean, vegetarian with a focus in a reduction in purines. For me, it was also important to cut out foods that had high fructose corn syrup, and other preservatives similar to that because those increased my uric acid levels. It’s been five years since the last time I have had an attack and I am able to do everything normally as of today.
I’ve attached 2 photos. One when it was at its worst, and another from just now

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Replies to "Hi, imamom I’m so sorry to hear about your daughter. It’s a devastating situation to be..."

Not sure why it wasn’t uploaded, but here are my feet today

@victorarrow Thank you so much for your very helpful reply to @iamom for her daughter’s battle with LV. What a painful and disruptive disease. It’s wonderful you’ve been relieved of your symptoms for 5 years. Wishing you continued success! Thank you again for sharing your experience and what worked for you!