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Ninerafaxstat 4 nonobstructive HCM
Hypertrophic Cardiomyopathy (HCM) | Last Active: 5 days ago | Replies (9)Comment receiving replies
Hello @hncm, here is a very brief overview of the research you are referring to:
"Safety and Efficacy of Metabolic Modulation With Ninerafaxstat in Patients With Nonobstructive Hypertrophic Cardiomyopathy"
- https://www.jacc.org/doi/10.1016/j.jacc.2024.03.387
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"Ninerafaxstat in the Treatment of Diabetic Cardiomyopathy and Nonobstructive Hypertrophic Cardiomyopathy"
- https://pubmed.ncbi.nlm.nih.gov/39194232/
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As you mentioned, the study concluded that it be moved to a Phase 3, but finding exactly when is unclear. Have you had a chance to discuss this research with your provider to inquire about whether or not you can become part of the research?
Replies to "Hello @hncm, here is a very brief overview of the research you are referring to: "Safety..."
No but seeing Dr. Ommen at Mayo MN next month so I will bring that up. But I've been researching and it doesn't seem like there's a Phase 3 yet. And with RFK Jr. cutting clinical trials, we're back in the Dark Ages.
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My provider knows absolutely nothing about ninerfaxstat for HNCM. But hey, it's rural Florida--not expecting much from cardiologists here.