Welcome, @iamom It doesn’t appear that @victorarrow has been active since originally posting their comment in 2021. But they may still get a notification in their email if they are still signed into the forum.

However, there are other members here who have LV. So hopefully they can share their experiences for what has helped them.

I’m so sorry to hear about your daughter and her 7 years of trying to work through this! As a mother this has to leave you feeling so helpless and frustrated for her.

Is she being seen at a larger teaching/research hospital such as a university?

Hi, imamom
I’m so sorry to hear about your daughter. It’s a devastating situation to be in, especially at her age. To answer a couple of the questions and to give some more insight, yes, it is an eastern medicine doctor that told me to test for uric acid. I had seen maybe a dozen different doctors around the US before and the only thing they could suggest was different types of oral or injection medicine. I am Indian, and the last resort we really had was to go to a naturopathic clinic in India. One of the doctors there had seen something like this before and recognized that you were acid may have been the cause so decided to test for it. I may be getting the numbers wrong but I think the normal level is 7 and mine was closer to 14. I don’t eat red meat because of my culture, but I did eat a lot of poultry, especially fried and not so healthy foods. I went on an almost purely natural diet for about six months before starting to introduce more lenient foods into my diet again. and by that I mean, vegetarian with a focus in a reduction in purines. For me, it was also important to cut out foods that had high fructose corn syrup, and other preservatives similar to that because those increased my uric acid levels. It’s been five years since the last time I have had an attack and I am able to do everything normally as of today.
I’ve attached 2 photos. One when it was at its worst, and another from just now