Connect
← Return to My husband is in denial
Discussion
Comment receiving replies
I will definitely go to the recommended website. Thankyou!
He’s been having difficulty turning over in bed for a year or more…we bought a railing, which helps. His walking (especially backwards or turning around) is like a wind-up toy—little steps, unsteady. He’s just started closing his eyes often. He’s tried the standard medicine for PD, but it made his toes curl terribly, with pain. Brain MRI showed nothing. Also, he has bladder issues—every time he stands up he has to go, quickly. We’re seeing a new neurologist in February. I can’t wait! I feel I’m slowly watching him change/I know it’ s not about me, but it’s hard.
Replies to "I will definitely go to the recommended website. Thankyou! He’s been having difficulty turning over in..."
@katrii
Of course, it is hard for you. Seeing a loved one having such a difficult time and not being able to find the right kind of treatment is very frustrating. I'm glad that you will be seeing a new neurologist. I hope the new neurologist can come up with a new treatment plan.
You said that the standard medicine was causing side effects. Has his doctor suggested a new medication? Here is a link to the Cleveland Clinic website which lists a variety of medications that can be used for PD, https://my.clevelandclinic.org/health/treatments/parkinsons-disease-medications
Has your husband been offered physical therapy? Some physical therapists have special training to help PD patients. If you would like more information take a look at the link from the Davis Phinney website, https://davisphinneyfoundation.org/lsvt-big-loud
Perhaps, in a previous post, you mentioned your husband's age and physical condition prior to these symptoms. If not, please share as you are comfortable doing so.
Will you post again with your questions and concerns?
Connect
I’m so sorry that you’re both going through all this. My husband has been taking Carbidopa Levodopa since he was diagnosed several years ago and his toes started curling in the last year. He recently had Botox injections, one in the foot and one in the calf, and it made a huge difference. These need to be repeated every 3 months. I hope your new neurologist is very helpful for both of you.