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Waldenstrom's: Should I take the new medication (rituximab)?

Blood Cancers & Disorders | Last Active: Jan 23 4:43pm | Replies (50)
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@loribmt

Welcome to Connect, @callahan. There are several discussions in the forum with members who have MDS.
There are several subtypes of MDS so while you’re reading, some of the stories and experiences shared might not apply to you.

I’m posting a link below for you. I think this discussion would be a good place to introduce you to the MDS support group. (More can be found by typing in MDS, or Myelodyplastic syndromes in the search bar at the top of the page. Feel free to jump into any conversation!

Living with MDS (Myelodyplastic syndromes)
https://connect.mayoclinic.org/discussion/living-with-mds/
This reply has links to some good informational articles that may be helpful for you to read about MDS. https://connect.mayoclinic.org/comment/925760/

How long ago were you diagnosed? Are you following any treatment plan for your MDS? Have you discussed your diarrhea/constipation issues with your doctor?

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Replies to "Welcome to Connect, @callahan. There are several discussions in the forum with members who have MDS...."
callahan | @callahan | Jan 23 2:06pm

Hello,
Diagnosed in February 2024. Treatment is INQOVI. I get frequent blood and platelet transfusions. No advice re the diarrhea/constipation issues. How can I join a support group (via zoom is ok) with my condition MDS II with excess blasts. Thanks for your reply.

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