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DiscussionReclast Infusions: Side-effects & Recovery time
Osteoporosis & Bone Health | Last Active: Feb 27 1:57pm | Replies (719)Comment receiving replies
Replies to "This past Friday I had my first round of Recast infusion due to severe osteoporosis. I..."
Yes, the stiff neck can be from Reclast. I had that but it went away by about day 5-6. Just kept alternating Tylenol and advil until it was gone. Then I felt fine. The first week reaction is common.
I had my first infusion on Halloween. I felt good the first day and was in bed for a full 3 days following with chills, sore neck, and basic muscle aches. I have lower back problems anyway, so figured that was part of muscle aches. I then got a bad headache, which lasted for about 3 more days. I messaged the nurse and told them I was religious about the Tylenol that they suggested. It is worthless for me, and did not work on the headache at all. The doctor told me to quit the Tylenol and that I could take an Aleve. That worked a bit. In a week, most of the symptoms went away, except the neck ache (I took Tramadol). I still have neck pain today but had an x-ray the other day and it was seen that I have arthritis in C-7. I still will get a Bone Density test in a year, and repeat if I see any good results. Don't give up....
Have your headache and pain level resolved? I sure hope so. I would encourage you to report the problems to FDA ( 1-800-FDA1088. They need to keep getting reports to know what is currently happening in the real world.
I too had this Reclast infusion and my first day went like any other. However, from the second day and for the past seven months I have experienced pain in my shoulders, arms, right hand and my left foot. The more I use them the worse they hurt and the pain never seems to go away completely. I did have flu like symptoms and the nausea feeling seems to come and go. I shared this with my endocrinologist and he expressed that the feelings I am experiencing are not from the Reclast and that I should see my rheumatologist. I saw my rheumatologist and they say that there is nothing they can see and therefore nothing they can treat. I have been told that they want to do another infusion next July and my endocrinologist says that he will try something different; not sure if I even want to go to their office. I understand that my endocrinologist is there to treat bone density not pain management. Nonetheless, I feel they need to be a bit more honest about the side effects from these infusions and then let the patient make their own decisions. Unless they are getting some kind of kick back or recognition for the amount of that stuff they use! Hope you are feeling better and hope the symptoms do not stay with you like they are me! I have found Physical Therapy has helped some but never does all the symptoms go away completely!
I had same issues, take Claritin along with Tylenol and ibuprofen. I took it for a month and feel back to normal. If needed, you can take it longer.
Good luck 🤞
@smiles349 I expected to be sick after my first infusion. The "acute phase reaction" is common with the first dose. This can last up to two weeks (for me it was 8 days). It is unlikely to happen again.
It helps to hydrate and have a slow infusion. Hope you feel better, that this becomes clear as the "acute phase reaction" and not a long term side effect, so you can maybe do more. Let us know!