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Blood Cancers & Disorders | Last Active: Jan 23 3:42pm | Replies (12)
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Quite frankly, Kris, the doctor should be concerned now! If I were you, I’d really urge dad to consider having a 2nd opinion and a larger teaching/research hospital like Mayo Clinic, Cleveland Clinic, John Hopkins, or any of the larger university facilities across the US.
From my understanding PCL is quite rare and he’ll have a deeper bench of specialists who may have more information and treatment options for him!
If interested, here’s a link to Mayo Clinic to initiate a request for appointment. http://mayocl.in/1mtmR63
Your dad needs a hematologist oncologist that has experience with this form of leukemia. Was he offered any type of treatment? Has he had a bone marrow biopsy?
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my dad is receiving care at Mayo Clinic. he went through a round of subq chemo infusions for about 7-8 months. then as his hemotologist here said. it went to sleep. it came back in November. his monthly bloodwork since has shown that things are growing, this month faster than last month. he's has biopsys scans etc. Since it's incurable and the last round of treatment damn near killed him, he's reluctant to go through treatment since when asked the doctors have failed to give him any kind of answers when he's asked how long does treatment buy him vrs how long he has with no treatment.