I had most my pancreas removed as well as spleen and gallbladder in 2020. In 2023 they found a small one in my liver and within 7 months I had more than 20 in my liver, a new one on what was left of my pancreas, also spread to Peritoneum, Prostate and bone. I see above someone mentioned a Pancreas cancer specialist, but what you really need is a NET Specialist. I started Lanreotide after finding the first in my liver. It did not seem to slow progression, but did stop tachycardia issues. After 14 injections of Lanreotide my NET Specialist recommended CapTem and after 3 cycles all measurable tumors shrank, some by half. Just finished my 5 cycle yesterday and my next scan is scheduled for Jan 28th and hoping for more shrinkage. Unfortunately most Neuroendocrine cancers spread, but it is typically slow and if you get to a NET Specialist they will tell you it's manageable. There is also a group on facebook that I have found very helpful/informative. On FB search neuroendocrine cancer ronny allan's group, everyone talks about their own experiences. You will find, eveyone is different and has different experiences/results, but very hopeful