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My story, Kyphoplasty advice

Osteoporosis & Bone Health | Last Active: Jul 4 6:23am | Replies (32)

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Profile picture for windyshores @windyshores

My surgeon recommended against kyphoplasty and said the outcome would be the same without, but that in the short term it sometimes brought some pain relief. I have 7 fractures and haven't had any kyphoplasties. Who knows what the right decision is: there are pros and cons to both.

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@windyshores We have both consulted with Dr. McCormick in MA. I live in Texas, heard him on a podcast and was so impressed we flew to MA for a consultation. I did Tymlos for two years, then Evenity for one year (just finished in June). Not sure what is next. I don't like the idea of Prolia and may opt for a bisphosphonate. What was your sequence? Also, found it interesting that you have trigeminal neuralgia (TN), which I also have. Mine is post-herpetic neuralgia, following a case of shingles. The virus damaged the opthalmic branch of the trigeminal nerve. While having shingles I began having excruciating pain in my eye, forehead and scalp. I was on gabapentin and increasing the dosage stopped the attacks. I would like to get off the gabapentin, but absolutely could not tolerate those attacks. TN is nicknamed the suicide disease and I understand that. Sites say it is the worst pain known to humanity and I understand that too. TN can be caused by compression on the nerve by a blood vessel and I would not hesitate to have the surgery for it (microvascular decompression surgery--MVD), but my TN was caused by the virus and not by a blood vessel, so the surgery would not help me. It's been 15 months and I keep hoping I will heal over time, but I have read posts from women who have had post-herpetic neuralgia from shingles for 3 years, 8 years and even 13 years. Depressing.