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Polymyalgia Rheumatica (PMR) | Last Active: 14 hours ago | Replies (31)

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@dadcue

Be careful below 5 mg of prednisone. I had problems when I got below 5 mg. It felt like PMR was returning until a cortisol level was checked. Most of my problems with lower doses of prednisone were likely caused by adrenal insufficiency although part of it could have been PMR.

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Replies to "Be careful below 5 mg of prednisone. I had problems when I got below 5 mg...."

I am aware of that and it could be adrenal insufficiency but I can't get my cortisol checked until I get the prednisone lower. There was no way I could go lower. The pain was too intense and I have a high pain tolerance. I tried it for 9 days it continued to ramp up. If I keep needing a biologic I will use that to try to get lower. If not I will keep trying to go lower with other strategies. Your personal experience with Actemra does not translate to everyone. Plus women have a more complex immune system due to having 2 x chromosomes and the x has the genes for the immune system.