Hi @alexgooch, Thank you for sharing your experience. I’m so sorry to hear how much you’ve been struggling. What you’re describing, the constant urge to take a full breath, the panicky feelings, and the physical symptoms like tingling and lightheadedness—sounds incredibly overwhelming. I can really relate to that "trapped" feeling when you just can’t seem to get the breath your body is begging for.
The fact that it gets worse during the winter/cold months is really interesting. I’ve noticed that cold air can sometimes be a trigger for me too; it feels sharp and can make the whole breathing process feel more strained. Have you tried anything like wearing a scarf or mask over your mouth and nose to warm the air before you breathe it in? I’ve found that helps a bit, especially on really cold days.
I completely understand how frustrating it is to go through test after test only to be told everything is “fine.” It can feel like no one truly understands what’s going on. Have you had a chance to talk with a doctor about the possibility of anxiety or a breathing pattern disorder like dysfunctional breathing? Sometimes these can cause a vicious cycle of symptoms, where the physical sensations feed the panic, which then makes the symptoms even worse.
For me, learning gentle breathing exercises (like Buteyko breathing) was a game-changer. It didn’t fix everything overnight, but it gave me a tool to manage those panicky moments when my breath felt out of control. Would you be interested in hearing more about that or trying something similar?
I’m glad you’re here, and I want to encourage you to keep advocating for yourself. You’re not alone in this, and there are people who understand what you’re going through. Please feel free to share more about what you’ve been experiencing or what has (or hasn’t) worked for you.
Hi Gabe!
I have tried Buteyko breathing but I didn’t seem to find any improvement (frustrating!!)
I haven’t currently found anything what helps it and what makes it worse is I can’t pinpoint if anything is triggering it! I have tried various diets, diffrent breathing exercises. Physical exercises, and doing less to see if it helps! Currently have found something that helps, I think this is why I get overly panicky some days as I don’t know how to control it!
Feeling unheard by doctors is also really frustrating. I have been trying to get a ct scan for months now and I am in a long waiting queue for this.
I did think it was anxiety but I am such a chilled non anxious person it would really surprise me if it was! It’s easier said than done to just forget about it and live day to day though, I can’t seem to get rid of the horrible urge I have in my throat that makes me seem to take a deep breath (that I can very rarely fulfil)
My doctor did speak about Inducible Laryngeal
Obstruction, which there are a few exercises you can do to help this, and sometimes they do help me catch a full breath but not all the time!
So as it stands I’m not further to finding a cause or feeling 100% normal day to day, it’s rather draining!!