Urostomy after cystectomy: Extension tube for sleeping?

Posted by donpeg @donpeg, Jan 14 5:12pm

My husband has a urostomy. He uses a bard foley bag but it is not long enough to turn at night.
What extension tubing could be used to make it longer? Thanks

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@donpeg, good question. I added your post to the Ostomy support group too. I'm also tagging some fellow urostomates like @msrollo1960 @katey122 @gordy6898p @katydid77 @ggarrepy @jmcmurdo to see if they have some tips to help your husband sleep more comfortably.

Donpeg, how long has he had the urostomy?

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@colleenyoung

@donpeg, good question. I added your post to the Ostomy support group too. I'm also tagging some fellow urostomates like @msrollo1960 @katey122 @gordy6898p @katydid77 @ggarrepy @jmcmurdo to see if they have some tips to help your husband sleep more comfortably.

Donpeg, how long has he had the urostomy?

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I have an illeostomy.

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I wish we knew what to use. My husband has had a urostomy for 5 years. He uses a nite-time drain bag which hangs inside a trash can beside his bed, He has learned how to turn a little on his side without disrupting anything. Most of the time he lies on his back. We have a frame which fits between the mattress and box springs and it keeps the covers from binding his feet. Good luck with finding a solution. Please update us if you do.

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Has anyone ever reached out to Bard? I will try. How hard could it be to make a night drainage bag with longer tubing.
I believe they are located in Ireland.

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It is possible to splice in an extension. I don't have the details any longer unfortunately. There is a person in the Memorial Sloan Kettering (MSK) bladder cancer support group that has done it on a Bard bag. If someone can contact the MSK support group coordinator maybe they can make the connection.

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I use the night bag from Coloplast and it is 4' long not counting the bag. From the looks of it I think it could be easily joined with another 4 feet, but I'd contact Coloplast as their customer service is quite good. The tube itself is 4 feet long, and separate from the bag. You just insert the tube in to the bag, and I've never had an issue with the bag or the tube.

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I did write to Bard . They are owned by BD. I hope they will reply. My husband is working on a work around.
The Coloplast bag is used with their products I believe and he uses Hollister. They all have their own. Convatec has a jug.

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@katydid77

I wish we knew what to use. My husband has had a urostomy for 5 years. He uses a nite-time drain bag which hangs inside a trash can beside his bed, He has learned how to turn a little on his side without disrupting anything. Most of the time he lies on his back. We have a frame which fits between the mattress and box springs and it keeps the covers from binding his feet. Good luck with finding a solution. Please update us if you do.

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For my urostomy night bag, I cut me a 1"x3"x35"length of oak molding. Sanded the end that shows from the out side of the bed. I put a large sturdy hook on the end of it and put it between the mattress and box springs and you can adjust it to go closer to towards your urostomy bag. Let it stick out about 2" from the mattress and box springs. by doing this you don't have to lay it in a trash can. I found a nice clear plastic holder at Target in their office supplies area. Since I have a bad hip and need to move it during the night I have reverted to using my Apple watch and set the alarm for 12:30, 2:30 and 4:30 to empty my bag that way I can move around with no restriction. I did make a board for my motor home also. Jackie

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Donpeg,

I use ConvaTec. They provide two adapters to allow connection to the Bard bag. They also have a 5' extension, ConvaTec Night Drainage Container Tubing, Byram Catalog HPCS: A4331 and Hollister Urostomy Drainage Tube adapter, Byram catalog HCPS: A4421 for the night drainage bag, a combination that may work. Hang in there.

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