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I am one year out with my diagnosis just finished 4th round of PRRT

Neuroendocrine Tumors (NETs) | Last Active: Jan 22 10:13am | Replies (24)
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@ericnjeffrey

I didn’t have symptoms until I had a colonoscopy in November. I had bloating and felt full easily. I lost 12 pounds. 5 weeks after the colonoscopy I had a colon resection. I only had one tumor. Grade 1. No mets. The bloating is better. My appetite is better. I haven’t had any additional weight loss.

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Replies to "I didn’t have symptoms until I had a colonoscopy in November. I had bloating and felt..."
nevinrbaskin | @nevinrbaskin | Jan 19 6:28pm

That’s great you’re doing better, I had a lot of symptoms bloating, severe fatigue and stomach pain for a few years passed off as gastritis but was actually my small intestines had two tumors that they removed with two feet of my small intestines which helped with some of that.. still get a lot of gurgling when I lay down and have to eat small portions and adhere to a healthy low fat diet staying away from food with high amines

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