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Starting 17th year with ET. What's ahead?

Blood Cancers & Disorders | Last Active: Jun 18 10:52am | Replies (78)
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@lynnevb

Hi eloise999,
I also have ET and I am triple negative. I take hydrea since age 60 and aspirin since diagnosis. I have had this since 2002, that would be 23 years now.
Here is a website I fine very helpful. It takes several readings to start to comprehend.
I am doing well. I hope you are doing well too. Hope you have a good hematologist/oncologist.
Let me know if you want me to share more about living with ET (triple negative).
https://www.nccn.org/patients/guidelines/content/PDF/mpn-patient.pdf

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Replies to "Hi eloise999, I also have ET and I am triple negative. I take hydrea since age..."
eloise999 | @eloise999 | Jan 19 4:08pm

Thank you very much. I am sure I will have a lot of questions. I am glad you are doing so well.

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nohrt4me | @nohrt4me | Apr 13 8:48am

As another long-timer (17 yrs ET CALR), I agree that this is a really good source of info!

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eloise999 | @eloise999 | Apr 20 12:07pm

Lynnvb, did you ever figure out what mutation was driving your ET?

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