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Lymphocytes on CBC

Posted by klgs @klgs, Jan 9 12:10pm

I am going on two months of being tested for lymphoma through biopsies with the needle and they can’t hey flow symmetry reading cause I’m not enough tissue so now they’re going to remove my lymph node from my groin next week. I have a question. My lymphocyte is like on the bottom end on my blood work. I just got it done again. How could you possibly have lymphoma if you have lymphocytes on the bottom end of this scale?

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kdsmiles | @kdsmiles | Jan 19 1:04pm
In reply to @jmhilde61 "I have sarcoidosis (cardiac w/pacemaker) which is an inflammatory/autoimmune disease. It sometimes goes hand in hand..." + (show)
@jmhilde61

I have sarcoidosis (cardiac w/pacemaker) which is an inflammatory/autoimmune disease. It sometimes goes hand in hand with lymphoma (and other diseases) because the body is in a constant state of inflammation which makes it susceptible to other illnesses (including cancer.) I started getting dime-sized red sores on both shoulders about three years ago which have since spread to all over my back with a few on my arms, legs and stomach, one on my face and one on my lower lip. I've had eight skin biopsies which all (except one) came back as probable lichen planus, an idiopathic autoimmune skin disease. (I don't believe that is correct because LP normally is in sun-exposed areas, is a bumpy purple/red rash, shows up on wrists and ankles first, and is very itchy. My spots don't meet any of those requirements.) The eighth biopsy came back as pigmented purpuric dermatosis (instead of LP.) Both PPD and LP can mimic cutaneous T-cell lymphoma so it must be ruled out. I'm now waiting for TCR testing on the PPD biopsy sample.

I'm trying to get in to rheumatology because my research shows my symptoms could fit Lupus, Rheumatoid Arthritis, Amyloidosis and Cryoglobulinemia as well CTCL. I have lots of neurological issues, brain fog, severe fatigue, joint and muscle pain, vision changes in addition to the skin lesions (one of which was biopsied a year ago and still hasn't healed.)

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Thank you for your comment. I also super from many auto immune disorders. Graves. Endometriosis. Had a firm of Guillan Barre 2016 in wheelchair for almost a year(?- still unsure of that dx) pituitary tumor partially removed in 2021.. then in early 2023 I started an issue with skin changes and we tried meds but I turned down skin dr and biopsies at that time. I truly thought it was going to go away. But since I've added many other issues in last 2 years so I'm being investigated for amyloidosis; but really wondering if this rash started any new disorder that's internal trying to warn me. I also have vocal problems for at least 4 years. Most days my voice is hoarse and hardly there. I have bilateral carpal tunnel just had surgery on right. I am sick most every day and have issues with eating and sick feeling within minutes of eating. If I exercise I lose my breath and get dizzy and heart races. It's just a big plop of tons of crazy things from all the ends of the body; BUT I know I'm lucky to be here and really I just want to get an answer treatment and let's get on with life again! Really like to work again and just be a part of life out of the house again! I hope you can find answers or are doing OK and have some form of remedy so you feel OK each day?

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jmhilde61 | @jmhilde61 | Jan 19 1:47pm
In reply to @kdsmiles "Thank you for your comment. I also super from many auto immune disorders. Graves. Endometriosis. Had..." + (show)
@kdsmiles

Thank you for your comment. I also super from many auto immune disorders. Graves. Endometriosis. Had a firm of Guillan Barre 2016 in wheelchair for almost a year(?- still unsure of that dx) pituitary tumor partially removed in 2021.. then in early 2023 I started an issue with skin changes and we tried meds but I turned down skin dr and biopsies at that time. I truly thought it was going to go away. But since I've added many other issues in last 2 years so I'm being investigated for amyloidosis; but really wondering if this rash started any new disorder that's internal trying to warn me. I also have vocal problems for at least 4 years. Most days my voice is hoarse and hardly there. I have bilateral carpal tunnel just had surgery on right. I am sick most every day and have issues with eating and sick feeling within minutes of eating. If I exercise I lose my breath and get dizzy and heart races. It's just a big plop of tons of crazy things from all the ends of the body; BUT I know I'm lucky to be here and really I just want to get an answer treatment and let's get on with life again! Really like to work again and just be a part of life out of the house again! I hope you can find answers or are doing OK and have some form of remedy so you feel OK each day?

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I'm so sorry you're having to deal with all of this, it is indeed a big plop! I'm with you, I think the hardest part of being ill is just getting a diagnosis which (I've found) often requires convincing providers to do the right tests or to (sadly) even just believe what we say. I'm glad you're being tested for amyloidosis. Sarcoidosis (my thing) can present in similar fashion so maybe taking a look at that, too, would be good. And if you still have the rash, having it biopsied might give you helpful information. I agree, I think skin issues are often a sign of systemic illness.

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