1. < Chronic Pain

Do opioids help with your chronic pain? - Successfully?

Posted by creyn51 @creyn51, Jan 5 11:25am

I used Opioids Post Surgery after my surgeries failed - successfully for 3 months. CRPS had set in both feet. Immediately after prescribing my third prescription for Opioids, my Surgeon pronounced me cured and discontinued any further care. December of 2016 was the last time I received a narcotic for my Pain. Just when I needed them the Most, I was Banned from any further Successful Pain Medication as Every New Pain Clinic told me that Opioids do Not Work for CRPS.
At a time when they are needed the most I have been Red Flagged as a Criminal Medicine Seeker and heard every excuse that Opioids do Not Work,and, are Not acceptable for long term use of over 3-6 months. Not even a Trial. I am unable to use NSAIDS. Gabapentin and Lyrica do not work and had too many side effects,
My research showed that Opioids should be used immediately if Nothing Else Works as TIME IS OF THE ESSENCE in treating CRPS. DO Opioids work on Your Pain? Do No Harm _ Do Nothing...

Interested in more discussions like this? Go to the Chronic Pain Support Group.

fncz | @fncz | Jan 19 1:01pm

They don’t particularly help with pain; at least not for me. They did put me in a stupor. And it’s hell getting off them.

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annie1 | @annie1 | Jan 20 2:50am

Yep Here I am at 3:34 AMI was trying to sleep but my pain won't let me. The surgeons nurse practitioner, nurse ratchet I call her, won't continue to give me oxycodone. I had my surgery March 1st 2024 and the surgery did not really help my pain after a few months out. I've been going to different pain clinics and none of them seem to be keeping out opioids. I only want to one other one besides the surgeon's office so far and a little worried that they're all going to say the same thing. I went to one last week and they gave me something called Tazanidine, which also is not doing anything for me. I'm going to get an epidural injection soon I'm just praying that will do something otherwise I'm back to zero again. I'm even thinking of seeing what countries in the world prescribe opioids more freely. I can't keep living in pain as most of you totally understand.

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1 reply
heisenberg34 | @heisenberg34 | Jan 20 10:53am

Man., so many drugs! So many in chronic pain! How does our medical community keep a straight face? The apparent lack of empathy is appalling. How can so few be so indifferent to the the crippling pain that so many of us suffer from?

Have a new issue? Here, take this new pill. Doesn’t work? Here, try the pill.
Am I a little upset? You bet! Doctors, please stop shuffling us around and start spending the necessary time and resources needed to get us to a better quality of life.

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kenc | @kenc | Jan 20 5:24pm
In reply to @sallyrenee "I recently had a friend tell me that her mom and aunt were both taking gabipentin..." + (show)
@sallyrenee

I recently had a friend tell me that her mom and aunt were both taking gabipentin for nerve pain and developed early dementia. I’m going to speak with my doctor about weaning off of it. For me when I’m taking so many medications it’s hard to tell where side effects are coming from, and what is working and what isn’t. The weight gain , shortness of breath, and a brand new heart murmur made me decide a more health conscious route. I was in a viscous cycle! Wake up pain, take Vicodin, prednisone, gabipentin, methocarbamol, Diclofenac, and two Advil and in a half hour I could semi function. With swelling Lasix and potassium were added on top of my enalapril HCTZ, Lexapro, bursar, and folic acid.

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Nope

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kb2014 | @kb2014 | Jan 20 11:27pm

No. They made it worse. I have not taken any since 2014. One of the better decisions I made.

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joanhope6 | @joanhope6 | Jan 22 7:45am
In reply to @annie1 "Yep Here I am at 3:34 AMI was trying to sleep but my pain won't let..." + (show)
@annie1

Yep Here I am at 3:34 AMI was trying to sleep but my pain won't let me. The surgeons nurse practitioner, nurse ratchet I call her, won't continue to give me oxycodone. I had my surgery March 1st 2024 and the surgery did not really help my pain after a few months out. I've been going to different pain clinics and none of them seem to be keeping out opioids. I only want to one other one besides the surgeon's office so far and a little worried that they're all going to say the same thing. I went to one last week and they gave me something called Tazanidine, which also is not doing anything for me. I'm going to get an epidural injection soon I'm just praying that will do something otherwise I'm back to zero again. I'm even thinking of seeing what countries in the world prescribe opioids more freely. I can't keep living in pain as most of you totally understand.

Jump to this post

I was also up at 1:30 am because of pain and I am still in pain. It has become a constant vicious daily cycle. I had my TKR February 2024 and very little relief. It has gradually become worst. My knee stiffens and is painful while am standing, walking and laying down. You would think I would get some relief after my PT exercises and after either riding my bike and walking 4 to 5 days a week. To no avail. HELP!!

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john406 | @john406 | Jan 23 11:27am

I have to say I am totally shocked by all the people who suffer the same as I. Chronic pain,no relief, none of the opiods do anything except maybe take the edge off,physical therapy,nothing, injections nothing. I could go on and on,but you all know. 6 back operations,3 of them fusions! Does anyone know of someone who has had a successful surgery? Or success with any medication? My doctor is a DO and keeps pushing physical therapy. I can not stand for more than 5 minutes. I can only walk a very short walk, and then my legs feel like jelly. It seems like most of us are in this same boat, headed out to sea! Oh and I can only sit in a very comfortable chair without having to get up and walk around after a little while.Fellow chronic pain patients, where is our miracle??

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1 reply
dmk | @dmk | Jan 24 8:37am

In my experience there are physical therapists and therapists. I have had not so great experiences with most then I found a DPT (doctor of physical therapy) that has got me through a RTS, TKR, CMC surgeries and has fixed some balance issues. I only see him every visit not techs, not different therapists. It might be worth a shot to find an excellent therapist where you have a one on one with just them. My therapist is a DPT, OCS, CSCS, BRM credentials. Might be worth a shot. Best of luck

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heisenberg34 | @heisenberg34 | Jan 24 10:34am
In reply to @john406 "I have to say I am totally shocked by all the people who suffer the same..." + (show)
@john406

I have to say I am totally shocked by all the people who suffer the same as I. Chronic pain,no relief, none of the opiods do anything except maybe take the edge off,physical therapy,nothing, injections nothing. I could go on and on,but you all know. 6 back operations,3 of them fusions! Does anyone know of someone who has had a successful surgery? Or success with any medication? My doctor is a DO and keeps pushing physical therapy. I can not stand for more than 5 minutes. I can only walk a very short walk, and then my legs feel like jelly. It seems like most of us are in this same boat, headed out to sea! Oh and I can only sit in a very comfortable chair without having to get up and walk around after a little while.Fellow chronic pain patients, where is our miracle??

Jump to this post

I hear you! We could be the same person with so many pain similarities. My biggest gripe is seeing so many docs and they all follow the same script. Scan records for ten seconds, ask you a couple of questions, give you a script for a new med, then make new appointment for next month. Seven to ten minutes and "Here's your hat, what's your hurry". I would really like to find a doctor here in our new town who would really take the time to look deeply into my pain.

My fusion surgery did nothing to my pain. Injections gave very short term relief. Meds helped for a couple of years, then stopped. Spinal cord stimulator helped quite a bit for about two years until it sudden just stopped. Now the docs look and see "neuropathy" and start the usual spiel: "Oh, you have neuropathy, There's no cure". I know that! I'm looking for some help in getting a little relief.

Anyway, Let's hope that the medical community will come up with some breakthrough therapy that will finally give all of us some hope. Have you looked into Scrambler therapy? It has given quite a few people relief from neuropathic pain. Check it out.

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1 reply
john406 | @john406 | Jan 24 2:34pm
In reply to @heisenberg34 "I hear you! We could be the same person with so many pain similarities. My biggest..." + (show)
@heisenberg34

I hear you! We could be the same person with so many pain similarities. My biggest gripe is seeing so many docs and they all follow the same script. Scan records for ten seconds, ask you a couple of questions, give you a script for a new med, then make new appointment for next month. Seven to ten minutes and "Here's your hat, what's your hurry". I would really like to find a doctor here in our new town who would really take the time to look deeply into my pain.

My fusion surgery did nothing to my pain. Injections gave very short term relief. Meds helped for a couple of years, then stopped. Spinal cord stimulator helped quite a bit for about two years until it sudden just stopped. Now the docs look and see "neuropathy" and start the usual spiel: "Oh, you have neuropathy, There's no cure". I know that! I'm looking for some help in getting a little relief.

Anyway, Let's hope that the medical community will come up with some breakthrough therapy that will finally give all of us some hope. Have you looked into Scrambler therapy? It has given quite a few people relief from neuropathic pain. Check it out.

Jump to this post

No have not tried or heard of Scrambler therapy. Thanks for the info.

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