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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 3 hours ago | Replies (936)

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@gingerw

@greenlantern Welcome to Mayo Clinic Connect. It's good to hear from someone who has has a long-term MGUS case and is still going strong!

Do you get testing done at that yearly appointment? Have you seen any trends?
Ginger

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Replies to "@greenlantern Welcome to Mayo Clinic Connect. It's good to hear from someone who has has a..."

Yes, blood tests for the usual markers... immunoglobulins A, M, -- the alphabet. No, trends, but I've had Myasthenia Gravis for 22 years, so that is the king of comorbidities.

If you haven't heard of MG, I explain it like this: if i see a curb while walking, my brain says to my nerves "send a message to your legs to step up" -- but my legs say "never got the message". So, I stumble.

Damn acetylcholine receptors. I'm not drunk, I'm just uncoordinated.