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If this helps, I wass diagnosed ten years ago and took it very seriously, My oncologist/hematologist, after taking dozens of tests, includingmy urine and a bone marrow biopsy, said I'll see St. Peter from something else, not MGUS.
I see him once a year (my doc, not St. Peter at the pearly gates).
Replies to "If this helps, I wass diagnosed ten years ago and took it very seriously, My oncologist/hematologist,..."
I’ve had it for few years now, and my levels are so low that I only have to see my oncologist hematologist yearly now.
I too was told my chances of getting myeloma was very slim.
With everything else I have going on (CIDP) that made me less stressed.
Bad enough I’m numb in both feet,and my r hand.
Can’t walk without cane or walker, my balance is so bad.
Have been going through this for 13 years now.
Really effects my quality of life.
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@greenlantern Welcome to Mayo Clinic Connect. It's good to hear from someone who has has a long-term MGUS case and is still going strong!
Do you get testing done at that yearly appointment? Have you seen any trends?
Ginger