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DiscussionEssential Thrombocytosis symptoms
Blood Cancers & Disorders | Last Active: 5 hours ago | Replies (115)Comment receiving replies
Replies to "Hi @1pearl I am also in the US in VA, currently receiving treatment from a specialist..."
Thank you for your reply.
I would like to receive a second opinion; however, I have Kaiser and I would only get another doc in their system who I doubt would challenge the diagnosis I got from the doc I have. I forgot to ask her how many patients she has treated like me for ET. I did have to inform her that Keytruda was recommended for triple negative breast cancer my sister had and she was my sister’s oncologist. She get get it approved and added to her treatment along with other chemo infusions. That was over three years ago and my sister has no evidence of disease now and is in remission but she is always fearful of recurrence. I just changed to Kaiser recently when I became 65 as I had no diagnosis on my right ring finger joint enlargement using my husband’s work insurance he paid quite a bit monthly for me to have. I though maybe I would get an answer since it has a large pool of docs. Instead, I got no answer on it and a diagnosis I of ET and hypertension too! I am just very concerned and confused at this point.
Just as an addendum, my platelets have consistently been over a million and did not respond to hydrea. I also have had low red blood cells and at times, slightly elevated white blood cells.