Hi stickball 1,
I recently was diagnosed with ET because of high platelets. Hematologist recommends I take 500 twice per day which seems high to me when she said she was starting me on low dose. I weigh 106 pounds. I already have had three basal cell carcinomas removed prior to this, so concerning to me Hydrea perhaps will cause me more of them. I had no symptoms prior to going to doctor for enlarged joint in my right ring finger proximal interphangeal phalange. And BCC removal. No diagnosis received on my finger joint which is similar to when I had it evaluated by hand orthopedist in 2023 with MRI. All this is very confusing and stressful to me and now my BP spikes occasionally when I am talking about my situation. Normally my BP is fine and I have been taking it at home everyday for three weeks now. At doctor visits my BP is high on diastolic and BP which earned me an Rx for liprinosil on top of everything else!
How high were your platelets when you were diagnosed? 350 is fantastic now.
Thanks for sharing and have a blessed Sunday.