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DiscussionAnyone had weird blackouts/seizures? Difficult to explain.
Epilepsy & Seizures | Last Active: 9 hours ago | Replies (8)Comment receiving replies
Replies to "@maryport I can't say for sure however to me it sounds like you may be having..."
@maryport
As @jakedduck1 has already mentioned, it seems you are having simple partial seizures, also known as auras. I have lived with epilepsy for more than 30 years without knowing it. My seizures started when I was a teenager, having all those bizarre sensations you mentioned in your post. My mother has taken me to many doctors, and all exams done (EEGs and MRIs) came out normal, nothing could be diagnosed. Today, I know they were simple partial seizures.
But with all those years without treating my epilepsy, it has evolved, being finally diagnosed in 2019 (when I was 48 years old). My seizures that were initially just auras have turned into complex partial seizures and more recently tonic-clonic ones.
Today, I know that having normal results on those exams does not exempt you from the possibility of having epilepsy. All my EEGs performed before 2019 were normal. In 2019 I went to see a new doctor and he asked to repeat my EEG, asking me to sleep as little as possible in the night before the exam, giving me also some other recommendations for this exam. Result: This EEG has shown my epileptiform waves and I was diagnosed with epilepsy.
I have copied here a link from The Epilepsy Foundation that might be helpful to you: https://www.epilepsy.com/what-is-epilepsy/understanding-seizures.
Wishing you all my best.
Chris (@santosha)
I was taking Frisium but stopped because it wasn’t making any difference. I did read that medication is of no benefit for non epileptical seizures. Thank you so much for your reply.