Primary Biliary Cholangitis: I would like to connect with others

Hi @john80 and welcome. I moved your post about wanting to connect with others living with PBC to this existing discussion:
- Primary Biliary Cholangitis: I would like to connect with others https://connect.mayoclinic.org/discussion/primary-biliary-cholangitis-stage-2/

I did this so that you can connect with PBC members like @cindy358 @irisjolie @kokamo @rosemarya @jackieg @bphpbc @lbo615 @jackie421blfdgurl @gema98 @athenalee @momx5dea and more.

Back to you, John. Is this a recent diagnosis for you? What treatment plan has been recommended for you?

Yes

@irisjolie, when were you diagnosed with PBC? How are doing now?

Thirty years ago I was diagnosed with PBC. I’m fortunate that the thirty years of PBC were not so bad. A positive attitude and willing to keep that attitude helped LOTS.

Currently major issues are putting me through a major adjustment period.

@john80, @irisjolie I want to extend a Welcome to Connect to both of you. I also want to introduce the two of you since you are both diagnosed with PBC.
I'm a transplant recipient. I did not have PBC, but I had (PSC) and did take URSO pre transplant and I did have many of the side effects that we can expect as patients with liver disease.

- John, I saw that you are already experiencing those 'yucky' symptoms that liver disease patients have to cope with. And that you are taking URSO. So, would you like to share a bit about yourself? How long ago were you diagnosed? How are you being monitored by doctor? Repeat labs?
- Iris, When were you diagnosed with PBC? Are you experiencing any symptoms? When were you diagnosed?

While we wait for other members to respond, What questions or concerns would you like to ask on Connect?