I have been in Clonazepam 0.5mg TID for 18 years

Posted by jeanne51 @jeanne51, Jan 7 4:49pm

My psychiatrist retired and I was left to find a replacement. It seems there are a majority of nurse practitioners these days taking patients as providers, many do not take insurance. I found a nurse practitioner with a very good educational background. I saw her in person and she renewed the medications I was in for 6 months. Next month we had a zoom meeting and she told me she wanted me off the Ambien and Clonazepam because I would get dementia or Alzheimer’s with long term use. She insisted I start tapering against my will. I had school phobia in grade school, began having depression symptoms in my 20’s, and in my late 20’s had two major panic attacks. I have been depressed with anxiety most of my adult life. I have been hospitalized twice because of this. I have never asked for an increase in dosage of Ambien or Clonazepam fur 18 years after I found a wonderful psychiatrist who was so good at medication management.
Now, tapering Ambien and Clonazepam I have started self mutilating by picking my fingers raw until they bleed. I can’t sleep at night, I have become socially phobic. I have become isolative and often think of suicide with no plan. I am 73 years old and I think it is so cruel to put me through this when all I want is to have quality of life, not quantity. I live with my husband in adult senior living which I have not adjusted to. Taking these meds away has decreased my desire to exercise and my endurance is decreasing. My new provider told me if I didn’t want to taper my medication that I should find a new one provider. I did manage to taper the Ambien but I am down to half of the Clonazepam and feel like I can’t go on. Please help me. I am on Paxil and Wellbutrin for depression but it is anxiety and insomnia making my life miserable. I am not the same person I was a year ago.
I feel miserable, she has destroyed any quality of life I had. I really don’t want to live anymore.

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@sears

You’re not alone. People are being cut off allover. Benzos are going the same way the opioids did.

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@sears, I responded to your message and realized it wasn’t directed to my comment, I understand now what you are saying. I was missing information at my end on further discussions about this issue, it finally came back hence my previous comment to you.

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@frouke

@sears, I’m very interested in what you know, please elaborate.

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About having some sort of permanent disability from taking Benzos?

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Please find another doctor. I also have anxiety and depression. Left on my own I can not sleep. My doctor proscribed Trazodone for sleep. It was a god send and allows me to sleep soundly through the night.

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@jeanne51

Yes, I too, felt kicked to the curb.
Now I am waiting to see another provider with hopes that she doesn’t continue the taper. To me it is unimaginable how a provider can do this. In my search for a new provider many don’t take Medicare and many won’t take “old” patients, most saying no one over 65.
I hope you found someone else to help you. For me, being on Clonazepam for 18 years and being expected to taper off with my long history of depression, anxiety, panic attacks and now social anxiety, it is bordering on negligence to just drop me in mid taper when all I want is to go back to my original dose.

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Good luck on your journey. I did get a neurologist who is a sleep specialist and would have prescribed the clonazepam for me but I had been off it long enough to know I never wanted to endure another taper if I didn’t have to. I’m sleeping thanks to Lunesta and my anxiety is better as well. It has taken over a year but I haven’t fallen once and I’m sharper mentally. I would not have known so I guess I’m somehow better off. Everyone is different and I know people in their 70’s still happily taking a benzo without issues.

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@jeanne51

Yes, I too, felt kicked to the curb.
Now I am waiting to see another provider with hopes that she doesn’t continue the taper. To me it is unimaginable how a provider can do this. In my search for a new provider many don’t take Medicare and many won’t take “old” patients, most saying no one over 65.
I hope you found someone else to help you. For me, being on Clonazepam for 18 years and being expected to taper off with my long history of depression, anxiety, panic attacks and now social anxiety, it is bordering on negligence to just drop me in mid taper when all I want is to go back to my original dose.

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You bring up an interesting point that most folks don't understand. The reason docs don't like seeing folks over 65 is because once we are on Medicare, the reimbursements from the govt. via Medicare is much less than the doc receives for a younger patient on traditional insurance via their employer plan. It's really night and day, so providers typically lose money on Medicare patients and make their money on those under 65. It's called cost shifting, so employers are in effect subsidizing low reimbursements via Medicare. 99% of people don't know this, only reason I do is because I was an Insurance executive and consultant until I recently retired. Sad that docs are dropping older folks but thats the reason. Best of luck to you!

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@arthur57

You bring up an interesting point that most folks don't understand. The reason docs don't like seeing folks over 65 is because once we are on Medicare, the reimbursements from the govt. via Medicare is much less than the doc receives for a younger patient on traditional insurance via their employer plan. It's really night and day, so providers typically lose money on Medicare patients and make their money on those under 65. It's called cost shifting, so employers are in effect subsidizing low reimbursements via Medicare. 99% of people don't know this, only reason I do is because I was an Insurance executive and consultant until I recently retired. Sad that docs are dropping older folks but thats the reason. Best of luck to you!

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I took care of geriatric patients half of my career and now I find myself in the same age bracket. I loved caring for the nursing home and home bound elderly but now that I have reached that age myself I feel discriminated against and feel lonely, and feel neglected.
When I need a medication like Clonazepam, I am rejected because of the stigmas. I sure do hope my provider will be able to help me.

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@rab65

Please find another doctor. I also have anxiety and depression. Left on my own I can not sleep. My doctor proscribed Trazodone for sleep. It was a god send and allows me to sleep soundly through the night.

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I have been on Trazadone as an antidepressant and I didn’t tolerate it.
All I hope for is getting my Clonazepam back so my quality of life, what remains of it will be good.

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@con123

I’m so sorry for your pain. I’m coming out the other end of a very long taper off 1mg Clonazepam after over a decade. The taper was forced by a young psychiatrist when it was working very well for me, or so it seemed. It was one of the most hellish things I ever went through. I’ve not had this drug for 15 months and I am just beginning to feel somewhat normal. The taper was 10 months. Last year I had to retire prematurely because I could no longer do my job. Anxiety and insomnia were horrible. I was anti-social and lost friends. I was a shell of myself in so many ways. On the upside, I am clearer headed. I no longer have stupid falls, bumps and bruises. I sleep using Lunesta and manage anxiety with yoga and exercise. I miss it sometimes, but I would not take it again. It has a sinister side. A taper needs to be very slow and the recovery period for your nervous system can take years. But it’s possible.

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The thing is I need to stay on the Clonazepam because as I taper I’m having symptoms that are not conducive to quality of life[.

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@con123

It is true that you need to understand your providers stance on prescribing Benzos. My primary care stopped prescribing and said I had to go to a psychiatrist to get Klonopin. So I found one and the first visit he told me I needed to taper off this “bad drug” while I argued all the ways it helped me. We did months of talk therapy and then a 10 month slow taper. It went ok from 1mg to .25mg but the side effects hit with a vengeance. He kept telling me that my body knew how to be calm and sleep and offered nothing to ease the problems. Before the taper was complete, he discharged me because the practice doesn’t treat seniors and I was turning 65. I felt kicked to the curb with no support.

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The beta blocker propanolol is what I used during the last and hardest part of my taper. I still use it and consider it a life saver.

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@jeanne51

Yes, I too, felt kicked to the curb.
Now I am waiting to see another provider with hopes that she doesn’t continue the taper. To me it is unimaginable how a provider can do this. In my search for a new provider many don’t take Medicare and many won’t take “old” patients, most saying no one over 65.
I hope you found someone else to help you. For me, being on Clonazepam for 18 years and being expected to taper off with my long history of depression, anxiety, panic attacks and now social anxiety, it is bordering on negligence to just drop me in mid taper when all I want is to go back to my original dose.

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Same thing happened to me. I started tapering when I was 67. My original doctor abandoned me and it was very difficult to find another willing to take on a “benzo patient” at my age. Horrible!

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