← Return to Lymphocytes on CBC
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Blood Cancers & Disorders | Last Active: Jan 19 1:47pm | Replies (12)
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Replies to "I'm interested in your story also. I have many wierd skin subnormal now lasting almost 2..."
I have sarcoidosis (cardiac w/pacemaker) which is an inflammatory/autoimmune disease. It sometimes goes hand in hand with lymphoma (and other diseases) because the body is in a constant state of inflammation which makes it susceptible to other illnesses (including cancer.) I started getting dime-sized red sores on both shoulders about three years ago which have since spread to all over my back with a few on my arms, legs and stomach, one on my face and one on my lower lip. I've had eight skin biopsies which all (except one) came back as probable lichen planus, an idiopathic autoimmune skin disease. (I don't believe that is correct because LP normally is in sun-exposed areas, is a bumpy purple/red rash, shows up on wrists and ankles first, and is very itchy. My spots don't meet any of those requirements.) The eighth biopsy came back as pigmented purpuric dermatosis (instead of LP.) Both PPD and LP can mimic cutaneous T-cell lymphoma so it must be ruled out. I'm now waiting for TCR testing on the PPD biopsy sample.
I'm trying to get in to rheumatology because my research shows my symptoms could fit Lupus, Rheumatoid Arthritis, Amyloidosis and Cryoglobulinemia as well CTCL. I have lots of neurological issues, brain fog, severe fatigue, joint and muscle pain, vision changes in addition to the skin lesions (one of which was biopsied a year ago and still hasn't healed.)