1. < Osteoporosis & Bone Health

Prolia discontinuation

Posted by czauderer @czauderer, Dec 12, 2024

Hi, due to an osteoporosis diagnosis, I took two injections of Prolia six months apart and due two side effects, I want to come off of it. I do not want to transition to a bisphosphonate or remain on one. How do I take myself off of Prolia safely? I am not getting a straight answer from my doctor.

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whiteswan | @whiteswan | 2 days ago
In reply to @windyshores "@whiteswan I think there are two shots because the full dose doesn't fit in one syringe!..." + (show)
@windyshores

@whiteswan I think there are two shots because the full dose doesn't fit in one syringe! They do it in arms, belly or in my case thighs.

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Thank you Windyshores for the answer. Really if a nurse is i good person, than a patient sensitive as me can do only one shot as Gently told.

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njhornung | @normahorn | 2 days ago

As one doctor (not an OP doctor) told me, I can always refuse the second shot. I prefer to make arrangements in advance so hopefully the second syringe can be saved for the next month.

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1 reply
windyshores | @windyshores | 2 days ago
In reply to @normahorn "As one doctor (not an OP doctor) told me, I can always refuse the second shot...." + (show)
@normahorn

As one doctor (not an OP doctor) told me, I can always refuse the second shot. I prefer to make arrangements in advance so hopefully the second syringe can be saved for the next month.

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@normahorn I tried that. They cannot save it for the next month.

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1 reply
njhornung | @normahorn | 2 days ago
In reply to @windyshores "@normahorn I tried that. They cannot save it for the next month." + (show)
@windyshores

@normahorn I tried that. They cannot save it for the next month.

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You (via an insurance company) paid for it so it should be your property.

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1 reply
windyshores | @windyshores | 2 days ago
In reply to @normahorn "You (via an insurance company) paid for it so it should be your property." + (show)
@normahorn

You (via an insurance company) paid for it so it should be your property.

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If I do Evenity again, I might try bringing a cooler and taking it home. But that may not be allowed (liability concerns about us injecting ourselves?). The office won't store it.

I can't remember exactly but I believe I paid less when I did one shot.

I wish we could just inject ourselves at home. Not sure why not. It's IM. I would do 1 1/3 which is my optimal dose!

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2 replies
sandrac | @sandrac | 1 day ago
In reply to @windyshores "If I do Evenity again, I might try bringing a cooler and taking it home. But..." + (show)
@windyshores

If I do Evenity again, I might try bringing a cooler and taking it home. But that may not be allowed (liability concerns about us injecting ourselves?). The office won't store it.

I can't remember exactly but I believe I paid less when I did one shot.

I wish we could just inject ourselves at home. Not sure why not. It's IM. I would do 1 1/3 which is my optimal dose!

Jump to this post

Hi, Evenity and Prolia are both Sub-Q, not IM. I have had both meds.
“Subcutaneous (SQ or Sub-Q) injection means the injection is given in the fatty tissue, just under the skin.” (from website)

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1 reply
kristie2 | @kristie2 | 1 day ago
In reply to @windyshores "If I do Evenity again, I might try bringing a cooler and taking it home. But..." + (show)
@windyshores

If I do Evenity again, I might try bringing a cooler and taking it home. But that may not be allowed (liability concerns about us injecting ourselves?). The office won't store it.

I can't remember exactly but I believe I paid less when I did one shot.

I wish we could just inject ourselves at home. Not sure why not. It's IM. I would do 1 1/3 which is my optimal dose!

Jump to this post

I did home injections with Evenity.

REPLY
laujodrik | @laujodrik | 1 day ago

I’m not sure there is an answer. If your bone density is normal you’ll be safe for a few months. I am being tested for the jaw disease osseocronisus from Prolia and have no choice. I may have to go in Tymlos of Forteo or risk bone fractures in my back. I’m sorry I ever started, but unfortunately once you go on these meds you go downhill and the consequences are not good. Everything I read is bad news and worse. If my Medicare drug plan does not cover this drug it will cost me a fortune and there are side effects as well. I hope someone comes up with something else.

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1 reply
windyshores | @windyshores | 1 day ago
In reply to @laujodrik "I’m not sure there is an answer. If your bone density is normal you’ll be safe..." + (show)
@laujodrik

I’m not sure there is an answer. If your bone density is normal you’ll be safe for a few months. I am being tested for the jaw disease osseocronisus from Prolia and have no choice. I may have to go in Tymlos of Forteo or risk bone fractures in my back. I’m sorry I ever started, but unfortunately once you go on these meds you go downhill and the consequences are not good. Everything I read is bad news and worse. If my Medicare drug plan does not cover this drug it will cost me a fortune and there are side effects as well. I hope someone comes up with something else.

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@laujodrik I have been told that Tymlos and Forteo are not very effective after Prolia. If you have jaw necrosis I can see that Reclast would not be a good option but I wonder if you could do at least some Evenity. Does your doctor suggest Tymlos or Forteo?

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2 replies
windyshores | @windyshores | 1 day ago
In reply to @sandrac "Hi, Evenity and Prolia are both Sub-Q, not IM. I have had both meds. “Subcutaneous (SQ..." + (show)
@sandrac

Hi, Evenity and Prolia are both Sub-Q, not IM. I have had both meds.
“Subcutaneous (SQ or Sub-Q) injection means the injection is given in the fatty tissue, just under the skin.” (from website)

Jump to this post

@sandrac sorry of course, Evenity is sub-cutanteous. Apologies! All the more reason to let us do it at home (and we could adjust the dose!)

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