Connect
← Return to Essential Thrombocytosis symptoms
Discussion
Essential Thrombocytosis symptoms
Blood Cancers & Disorders | Last Active: 5 hours ago | Replies (115)Comment receiving replies
2000 mg of HU is rather excessive. I started out with 500 mg per day seven months ago. Now on 500 mg 4 times per week for the last two months as original dosing was driving platelets too low. Now my platelet count is right in the middle (350). I have a history of skin cancer and just had two biopsies of suspicious lesions removed from the top of both hands. Dermo doc thinks they are squamous cells, waiting for lab results.
There’s no free lunch with HU therapy. There’s always something lurking in the background. Finding the right hematologist is critical to your survival, as well as paying attention to any body changes you notice. I’m fortunate to have found a professional who is a compassionate, caring physician.
I’m reluctant to name him on this forum as I’ve already received scam emails using the Mayo Clinic connect blog network.
Replies to "2000 mg of HU is rather excessive. I started out with 500 mg per day seven..."
Connect
Hi stickball 1,
I recently was diagnosed with ET because of high platelets. Hematologist recommends I take 500 twice per day which seems high to me when she said she was starting me on low dose. I weigh 106 pounds. I already have had three basal cell carcinomas removed prior to this, so concerning to me Hydrea perhaps will cause me more of them. I had no symptoms prior to going to doctor for enlarged joint in my right ring finger proximal interphangeal phalange. And BCC removal. No diagnosis received on my finger joint which is similar to when I had it evaluated by hand orthopedist in 2023 with MRI. All this is very confusing and stressful to me and now my BP spikes occasionally when I am talking about my situation. Normally my BP is fine and I have been taking it at home everyday for three weeks now. At doctor visits my BP is high on diastolic and BP which earned me an Rx for liprinosil on top of everything else!
How high were your platelets when you were diagnosed? 350 is fantastic now.
Thanks for sharing and have a blessed Sunday.