Thank you for the comments--I will check out the article. The clinical study I'm on is not a blind study--So I am definitely on the drug. The study is being conducted through Mayo. I am hoping once the study is done I can transfer my care to Mayo, in the meantime I am being seen at CentraCare in St. Cloud. This is where my Jakafi is prescribed and as you know it is expensive the kind pharmacist has found a grant to help with costs. This was not so at Mayo--the pharmacist there was not helpful--probably too much going on.
Sorry I'm rambling, to answer you question about Jakafi--yes I have side effects, diarrhea, leg muscle spasms. night sweats and low grade headaches.
The good news is my hemoglobin was at a 10--this last check.