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Starting 17th year with ET. What's ahead?

Blood Cancers & Disorders | Last Active: Jan 19 4:08pm | Replies (52)
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@eloise999

I am new to my diagnosis. I am triple negative ET. It looks like that is a small percentage of ET patients. Does anyone here have it? What are the differences? What should I be aware of or look out for. Are treatments the same or do I have a more limited set of drugs?

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Replies to "I am new to my diagnosis. I am triple negative ET. It looks like that is..."
janemc | @janemc | Jan 19 6:59am

Triple negative! You are a unicorn among unicorns, eloise999.

You are asking great questions.

My ET is MPL-driven, so unfortunately I have no personal experience to share. Hope better informed voices will chime in soon!

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janemc | @janemc | Jan 19 7:03am

Did you know you can search for topics on this forum?

Try entering "triple negative" or "triple negative ET" in the search bar at the top of the page.

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lynnevb | @lynnevb | Jan 19 2:30pm

Hi eloise999,
I also have ET and I am triple negative. I take hydrea since age 60 and aspirin since diagnosis. I have had this since 2002, that would be 23 years now.
Here is a website I fine very helpful. It takes several readings to start to comprehend.
I am doing well. I hope you are doing well too. Hope you have a good hematologist/oncologist.
Let me know if you want me to share more about living with ET (triple negative).
https://www.nccn.org/patients/guidelines/content/PDF/mpn-patient.pdf

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