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Essential Thrombocytosis symptoms

Blood Cancers & Disorders | Last Active: 5 hours ago | Replies (115)
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@sregiani

Hi, any updates? My platelets are now 746, my highest. Seeing my Heme Doc on Tuesday and don't want to take HU due to side effects of skin cancers. I've had enough of those already and I enjoy being in the sun daily. Any anecdotal experience you can share might be helpful for all of us. Thanks!
Sherry

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Replies to "Hi, any updates? My platelets are now 746, my highest. Seeing my Heme Doc on Tuesday..."
lyno29 | @lyno29 | Jan 18 2:02pm

Did blood work two months ago and my platelets had gone down 10,000…better than nothing but still over a million. Cholesterol was significantly lower.
Drew Blood again yesterday and see my doctor on Monday so more info then.

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janemc | @janemc | Jan 19 6:54am

I have gray/red hair and pale skin -- perfect skin cancer fodder. I have been on a pretty high dose of HU for more than a year.

I wear a sun hat anytime I'm outside, even when driving. I wear sun-blocking clothes too: dark-colored, densely woven fabrics are best.

For me, taking these precautions is better than worrying about blood clots. I'm not overjoyed to take HU, but I want to outlive my dogs and my elderly husband.

There are other meds for ET . . . ask your doctor! Hope you have a productive appointment to figure out what is best for YOU!

When will Cadbury sponsor a study to prove that CHOCOLATE cures ET????

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lyno29 | @lyno29 | Jan 20 3:20pm

Bloodwork results. Platelets remained around the same from a year ago when I started on the homeopathic Arnica.. Cholesterol is down. Dr just warned me to watch for blood marrow scaring.

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