← Return to Essential Thrombocytosis symptoms

Discussion

Essential Thrombocytosis symptoms

Blood Cancers & Disorders | Last Active: 4 hours ago | Replies (115)

Comment receiving replies
@loribmt

Welcome to Connect, @clickpaw. There are diets posted online to potentially lower platelets by reducing inflammation in the body. But understanding the reasons behind elevated platelet counts is essential for determining effective strategies for reduction.
Are you working with a hematologist to find out the underlying cause for your elevated platelets? Have you had any genetic testing done to check for acquired mutations in genes such as CALR or JAK2 which can cause Essential Thrombocythemia (ET)?

Jump to this post


Replies to "Welcome to Connect, @clickpaw. There are diets posted online to potentially lower platelets by reducing inflammation..."

Hello and thank you for reaching out, I live in Canada and no my hematologist has not done any tests. I was diagnosed back in 2019 but all he told me was my platelets are high and did I want to take meds for it, he did not tell me the seriousness of it, then my family DR sent me back to him in September 2024, that is when I started looking into what it was, and what hydroxyurea was, I do not want to take it. I live within 8 miles of a nucurlar plant. My platelets where 807 in September and with diet I got them down to 749 in early November, all I eat is oatmeal, brown rice, fish, dark chocolate, ginger, mushrooms, onion, garlic, berrys, whine, coffee and rasins. January 15 they where 739, they diden't go down much because i started drinking lactose free milk, creamchees, and cream. I am only 95 pounds, so i need more food.