@minnmitzi, @ 3dogs, and all... I'm a 78 almost-Feb 6th!!! Yea! ... year old woman with multiple medical issues for decades, including undiagnosed RLS for many years. It was first actually diagnosed in 2019 by the Mayo sleep department after a sleep overnight test. I have serious obstructive sleep apnea and have used a C-pap for years prior, now every night since that 2019. The apnea is worse and now I use a bi-pap and added O2 every night. It's wonderful, although the noise is becoming more intrusive. Calling to get a different compressor if possible.... When I was diagnosed with RLS, the doctor put me on Iron with C daily, now I take the Clear Ferrin supplment that works much better. She added Requip 1 mg nightly to attack more symptoms. I take it in the late evening, before my nightly meds on the advise of a Connect friend who said he gets better night results after the Requip is in his system for a few hours. So far, Requip continues to help my RLS symptoms along with the specific ferritin supplement which brings my levels up from 15 in 2019 to over 150 last year. The doctors require ferritin level above 100 to be satisfactory for RLS help.
I have iron infusions every year when the ferritin gets below 50ish. Will have blood-work in Feb so we'll see. RLS apparently is affected by ferritin levels specifically, so this special iron test along with iron absorption tests are extremely important in treating RLS. Few doctors request the ferritin testing. Therefore, your regular blood-work comes back with perfect Hemoglobin and Hemocrit levels, so your physician considers your iron levels fine. Not fine. Ferritin levels don't show unless specifically tested. And supplements should attack ferritin replacement specifically.
This became one of the most exciting discoveries in my medical journey, the RLS and ferritin levels. Low ferritin affects every organ, as does iron and absorption, so imagine the whole body improvement I felt on getting the infusions and the correct supplements.
I also added Magnesium tablets daily to my supplementation routine. 500 mg daily. It helps resolve muscle cramping in my entire body especially legs and feet, naturally. I also, when necessary, use Kenalog cream on my feet and legs when the pain is most severe, or I can't get it to stop otherwise. I take CBD gummies with other herbs added, no THC, every night for anxiety and sleep assistance. This combination works wonders for me and until recently I was resting pretty well. Surely, RLS is much improved.
I am seeing my rheumatologist next week and hope to determine what is causing sleep interruptions, tremors, etc at that visit. I don't awake rested now! Pooh! But, legs are still controlled well.
Wishing you all well on this crazy journey of ours. No fun, but there are some answers and help. We just need to find doctors who listen, understand, are knowledgeable and caring. I did, finally.
Blessings as you walk this road... Elizabeth
have you tried compression stockings?
Seems to help with the creepy crawly kind of RLS.
The desire to move is reduced or eleminated..
and a lot less side effects then medications.