Newly diagnosed and scared

Hi Julie. I am really bad with all of this posting, etc.
I think I replied to you on the wrong message. 4dogsrental is my name on this site, but I have no idea how I got that name.
Basically, I wrote posts about my 7 weeks of treatment experience for the same type of cancer that you have, apparently. I hope the information is helpful to you.

Thank you so much for sharing your story and the week by week details. Yes, I am stage 1 and my treatment begins Tuesday. Same chemo/radiation schedule. I value this community - I'm learning so much and that was/is what I am seeking. It's the little things... like yes, you have to eat and drink, but it's okay to take one little swallow, rest, and do it again. The "how to eat an elephant" metaphor in real life!

Hi Julie,

The Mayo Head & Neck Support Group (which meets once a month) and Support for People with Oral and Head and Neck Cancer (SPOHNC) were helpful support groups during my journey. It was nice to share with others who understood my situation during my treatments and recovery.

Best of Luck!
Eric

@4dogsrental, if you would like me to change your username, send me a note using this form https://connect.mayoclinic.org/contact-a-community-moderator/

@jkhagen1.I have posted this a number of times, but folks seem to feel it is of value. So here it is again.

I had SCC on the base of my tongue and a couple of lymph nodes in the fall of 2020. I had chemo and proton radiation, since have had multiple cleans scans.

I wrote a blog during my experience (non-revenue generating) if you would like to review it, the link/URL is below. My wife, Suzy, wrote a wonderfully insightful post called lists and non-advice advice.
https://stevefleurysblog.com/2021/01/05/lists-and-non-advice-advice/
You can read the entire blog at:
https://stevefleurysblog.com/2020/10/29/part-1-the-beginning/

@stephenrfleury Thanks so much for sharing. Very good "non-advice" advice. Some I'd heard, much I hadn't. Peace be with you.

How are you doing so far? I’ll be keeping you in my prayers tonight. Kick cancer’s ass!!!!!!!

Meh. Getting used to the routine and the side effects. One day at a time! (5 more infusions and 31 more radiation treatments) but who's counting? 😀

Meh indeed. In the coming weeks it may be a little more bothersome. On a scale of one to Adele, in the coming weeks you might be approaching the Adele sadness level. But fear not, we gotcha. Whine if you want to. Scream if you need to. Look forward to Spring.

Hi. I am going through a similar protocol for thyroid cancer, left behind on my trachea. 6 weeks radiation. 1 day a week, chemo. I am in week 2. So far ok.
Thankful we have a way to kill cancer.