1. < Prostate Cancer

25 Fractions IMRT PROSTATE RADIATION Completed Yesterday

Posted by paul28 @paul28, Jan 15 7:01am

Iam so happy that I can stay home today!
I went 25 times over 5 weeks.
I finally "went along" with Oncologists insisting on IMRT.
After all is said and done, I have no immediate complaints, now waiting to have blood tests, scans, whatever, in 2 weeks.

I am still on ORGOVYX, now in the 7th month.
After having the whole array of side effects in the earlier months, my side effects now have become very minimal.
I do continue to have daily diarrhea. I likely cannot attribute this to ORGOVYX or Radiation, as I was having that before my Prostate cancer was diagnosed.

I am tired ..... of everything. I need some good news!
PAUL

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callibaetis | @callibaetis | Jan 15 7:40am

The good news is that you’ve completed the radiation. I too was thrilled by the prospect of not having to glug a bunch of water and make the drive to the hospital for treatment. My bowels were pretty unsettled for the first two weeks post treatment. Now, at six weeks post, the bowel stuff has subsided. The urinary symptoms have improved also. Still have some variable nocturia. All in all, the trend is one of gradual improvement.

Hope your symptoms improve as well. All the best!

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1 reply
rparsons | @rparsons | Jan 15 7:47pm
In reply to @callibaetis "The good news is that you’ve completed the radiation. I too was thrilled by the prospect..." + (show)
@callibaetis

The good news is that you’ve completed the radiation. I too was thrilled by the prospect of not having to glug a bunch of water and make the drive to the hospital for treatment. My bowels were pretty unsettled for the first two weeks post treatment. Now, at six weeks post, the bowel stuff has subsided. The urinary symptoms have improved also. Still have some variable nocturia. All in all, the trend is one of gradual improvement.

Hope your symptoms improve as well. All the best!

Jump to this post

Congratulations you are done. The worst is behind you. I did 28 rounds of IMRT & 18 months of Elagard hormone therapy.
Finished all that this past July. I am just dealing with daily anxiety now. Hope you don’t have any side effects. As everyone tells me. Put it behind you & go enjoy your life. Be well & go have some fun.

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1 reply
paul28 | @paul28 | Jan 15 8:02pm

@rparsons
Seems like upon completion of IMRT, everyone assumes that your prostate is now without cancer? The radiation techs had me ring the bell as if I'm a cancer survivor?
I have blood tests on the 30th, but am I to assume all is now good?
I obviously don't know how to feel about all of this!
PAUL

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2 replies
rparsons | @rparsons | Jan 16 8:51am
In reply to @paul28 "@rparsons Seems like upon completion of IMRT, everyone assumes that your prostate is now without cancer?..." + (show)
@paul28

@rparsons
Seems like upon completion of IMRT, everyone assumes that your prostate is now without cancer? The radiation techs had me ring the bell as if I'm a cancer survivor?
I have blood tests on the 30th, but am I to assume all is now good?
I obviously don't know how to feel about all of this!
PAUL

Jump to this post

Paul I struggle with that as well to the point I am dealing with anxiety. I am retired & I dwell on that the same issues every day. None of us have a crystal ball. As of now we are cancer free. Our intent was it to be curative. How we stop dwelling on it I don’t know. I guess time, staying busy & exercise. Unfortunately you @ I are worriers. I come from a long line of worriers.
Can anyone else weigh in.
Thanks

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1 reply
paul28 | @paul28 | Jan 16 9:34am

@rparsons , I am right there with you! I do worry about all things cancer related. How can you not!?
I was having anxiety years prior and unrelated to anything that is going on now. Zoloft fixed that problem and a good thing it did! I don't know how I could have managed the past two and a half years of cancer issues along with anxiety, as I had once had it! It was awful!
I sincerely hope that I can continue to worry but NOT have any cancers !
Thanks you for your reply and insight. All is appreciated!
PAUL

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3 replies
ecurb | @ecurb | Jan 16 2:27pm
In reply to @paul28 "@rparsons , I am right there with you! I do worry about all things cancer related...." + (show)
@paul28

@rparsons , I am right there with you! I do worry about all things cancer related. How can you not!?
I was having anxiety years prior and unrelated to anything that is going on now. Zoloft fixed that problem and a good thing it did! I don't know how I could have managed the past two and a half years of cancer issues along with anxiety, as I had once had it! It was awful!
I sincerely hope that I can continue to worry but NOT have any cancers !
Thanks you for your reply and insight. All is appreciated!
PAUL

Jump to this post

I rang that bell in 3/2023. Started ADT. 25 months later, I stop ADT if my PSA remains at < .01. I ll know in 6 more days. Bruce

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1 reply
paul28 | @paul28 | Jan 16 2:37pm
In reply to @ecurb "I rang that bell in 3/2023. Started ADT. 25 months later, I stop ADT if my..." + (show)
@ecurb

I rang that bell in 3/2023. Started ADT. 25 months later, I stop ADT if my PSA remains at < .01. I ll know in 6 more days. Bruce

Jump to this post

I see you realizing a great milestone in 6 days!
The best to you in all coming days and years!
PAUL

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1 reply
callibaetis | @callibaetis | Jan 16 7:39pm
In reply to @paul28 "@rparsons Seems like upon completion of IMRT, everyone assumes that your prostate is now without cancer?..." + (show)
@paul28

@rparsons
Seems like upon completion of IMRT, everyone assumes that your prostate is now without cancer? The radiation techs had me ring the bell as if I'm a cancer survivor?
I have blood tests on the 30th, but am I to assume all is now good?
I obviously don't know how to feel about all of this!
PAUL

Jump to this post

Actually the reason to ring the bell is to signify that we’ve survived radiation treatment 😀! The cancer is still there. Hopefully the radiation will have scrambled the cancer DNA enough that it fizzles out over time. Now, it’s a matter of watching, waiting, and hoping for a successful outcome.

REPLY
1 reply
callibaetis | @callibaetis | Jan 16 7:50pm
In reply to @rparsons "Congratulations you are done. The worst is behind you. I did 28 rounds of IMRT &..." + (show)
@rparsons

Congratulations you are done. The worst is behind you. I did 28 rounds of IMRT & 18 months of Elagard hormone therapy.
Finished all that this past July. I am just dealing with daily anxiety now. Hope you don’t have any side effects. As everyone tells me. Put it behind you & go enjoy your life. Be well & go have some fun.

Jump to this post

Thanks! I have a fishing trip upcoming that involves extensive travel. When I completed radiation I thought, “no way am I going to spend two days traveling coupled with many hours on a plane”. Now, it looks like it’s a go.

All the best, hope that you daily dealings improve and resolve!

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heavyphil | @heavyphil | Jan 17 6:11am

CONGRATULATIONS!! I completed my 25 sessions about 6 weeks ago and I STILL feel like I’m on vacation…

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