Diagnosed with sarcoma? Let's share

Posted by Colleen Young, Connect Director @colleenyoung, Jun 21, 2017

Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.

As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.

Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?

Interested in more discussions like this? Go to the Sarcoma Support Group.

Colleen Young, Connect Director | @colleenyoung | 2 days ago

In reply to @ss3336 "What's the fastest way to get treated by him?" + (show)

@ss3336, you can request an appointment following the guidance on this page: http://mayocl.in/1mtmR63

Colleen Young, Connect Director | @colleenyoung | 16 hours ago

In reply to @elainebr "I was diagnosed with adrenal leiomyosarcoma in December 2023. Frequent scans have revealed multiple lung nodules...." + (show)

@elainebr, how are you doing? Did further investigation confirm or rule out lung metastasis?

elainebr | @elainebr | 16 hours ago

In reply to @colleenyoung "@elainebr, how are you doing? Did further investigation confirm or rule out lung metastasis?" + (show)

Unfortunately it is metastatic spread of adrenal leiomyosarcoma to my lungs. I head back to consult with my oncologist on the 23rd. Luckily I have no symptoms right now.