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Starting 17th year with ET. What's ahead?

Blood Cancers & Disorders | Last Active: Jan 19 4:08pm | Replies (52)

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@cariadk

Diagnosed at 60 now almost 65 CALR on HU 1000 5x/wk 500 2x/wk and aspirin daily also HRT an unpopular choice according to my last Hematologist that Im not going to drop. My levels started at 1237k. I thought I had Covid and went in to ER. Was told I had a panic attack. now fairly stable at 600k. Anecdotally my levels seem to get higher when I am physically or mentally stressed. I’m working on stress management

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Replies to "Diagnosed at 60 now almost 65 CALR on HU 1000 5x/wk 500 2x/wk and aspirin daily..."

Great work, lowering your platelets so dramatically.

Keep taking good care of yourself and please don't be shy about sharing your stress management secrets!