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Prednisone cumulative dose in PMR

Polymyalgia Rheumatica (PMR) | Last Active: 6 hours ago | Replies (14)

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@edwardh

Good questions, maye, and a subject that I will be interested in hearing more about.
Just back from the entomologist, no that's not right lol, the endocrinologist. I am off Prednisone after 18 months, and PMR is in remission. Now we are trying to determine the cause of the muscle and cognitive fatigue and muscle weakness that I am still experiencing. It came on when I was down to a 7mg. dose of Prednisone and has persisted. I have been off the med for 4 months. The doctor thinks it may be corticosteroid myalgia which can take a year to resolve. Waiting now for the results of blood tests since there may be other causes such as thyroid or the possibility that the PMR is not in remission (in which case I will need to go back on Prednisone). While on Prednisone I was also prescribed alendronate, the generic version of Fosamax to protect my bones (which has its own side effects).

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Replies to "Good questions, maye, and a subject that I will be interested in hearing more about. Just..."

Edwardh, I've posted before about having muscle problems. I have GCA and PMR, and started having muscles problems after tapering the prednisone from 60 mg/day to 17.5. I strained several muscles in my legs jogging, and had to stop doing strenuous exercise. I was afraid of doing permanent damage. Other than that my muscles seem sore fairly often even though I'm just doing the same activities and exercises I've always done. I'm hoping the muscle problems will go away eventually as I continue to taper the prednisone.

I was also on Alendronate for about a month, but I had to stop due to stomach irritation.