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Hailey-Hailey Disease

Skin Health | Last Active: Sep 3 7:58pm | Replies (169)

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@k108

I am Japanese. please tell me. Is it difficult to treat with naltrexone alone without tacrolimus? Tacrolimus is not prescribed in Japan because of its side effects. Naltrexone has been in use for 4 days. I also take magnesium supplements.

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Replies to "I am Japanese. please tell me. Is it difficult to treat with naltrexone alone without tacrolimus?..."

Hello, I'm only taking Low dose naltrexone 3mg at the moment, no tacrolimus. I also take magnesium chloride. It has to be chloride not sulfate. Also, vitamin D3 3000iu daily. I've only been on it for 2 weeks now and seeing improvements. My dermatologist also gave me mupirocin ointment to apply to the areas.
You need to avoid sugar and go on a low carb diet. Tomatoes also increase inflammation which is not good for hailey-hailey. I have had flares for the past year and doing these and taking my meds are really helping. First time in a yr that I'm not in severe pain and healing.
Good luck and I hope this helps. This is a terrible disease.

Pimecrolimus is an alternative that I use. Can you get that on Japan? I dont do naltrexone only pimecrolimus and Magnesium 250mg. Have been lesion free one year.

Hailey Hailey
I have been taking low dose naltrexone 1.5 mg for a few months and am completely cleared up. But this is something you must always take, if you stop taking it, the out break will re occur.