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Hailey-Hailey Disease

Skin Health | Last Active: Apr 16 2:08pm | Replies (171)

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Profile picture for dschoening @dschoening

I have had Hailey-hailey for 20 years. Get your doctor to put you on Tacrolimus ointment and begin taking Magnesium supplements. Wear loose clothing and try to eliminate friction. That is what makes your skin come apart. Good luck

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Replies to "I have had Hailey-hailey for 20 years. Get your doctor to put you on Tacrolimus ointment..."

I, too, have had HH for about 20 years, but was only diagnosed a couple of years ago. I’m using tacrolimus ointment, sometimes a steroid ointment when the inflammation is too much. How much magnesium do you take, and does it cause unwanted side effects (like taking milk of magnesia)?