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MELD Score went down

Transplants | Last Active: Jan 20 2:43pm | Replies (8)

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@pjrace

We live 11 hours from Mayo Phoenix. We will be relocated on the 23rd (confirmed today) and await the transplant. Labs will be done at Mayo when we get there. Looking forward to getting settled into our place and having a little vacation before it gets crazy.

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Replies to "We live 11 hours from Mayo Phoenix. We will be relocated on the 23rd (confirmed today)..."

@pjrace, I thought you might appreciate some of these related discussions as you prepare for your liver transplant at Mayo Clinic in Arizona.

- What's your Liver Transplant experience Mayo Clinic (Arizona) https://connect.mayoclinic.org/discussion/how-long-waiting-at-mayo-clinic-in-arizona-for-liver-transplant-after/

- Is having a car mandatory at transplant lodging? https://connect.mayoclinic.org/discussion/is-having-a-car-mandatory-at-transplant-lodging/

- Waiting for the Call: What needs to get done at home before you go? https://connect.mayoclinic.org/discussion/waiting-for-the-call-what-needs-to-get-done-at-home-before-you-go/

- Packing question: What did you have ready for "the call"? https://connect.mayoclinic.org/discussion/packing-question/

All the best with the move closer to Mayo Phoenix and the little vacation before it becomes medical. Be sure to ask all the questions you want while you wait and keep us posted. 🙂
- When liver is available for transplant how much time to arrive? https://connect.mayoclinic.org/discussion/when-liver-is-available-for-transplant-how-much-time-we-have-to-arriv/

And for your caregiver:
- What to watch for as a caregiver after liver transplant https://connect.mayoclinic.org/discussion/what-i-should-stay-watchful-as-a-caregiver-after-liver-transplant/

- Transplant Caregiver Advice: Got Tips to Share? https://connect.mayoclinic.org/discussion/transplant-caregiver-advice-got-tips-to-share/

We are 14 hours away from Mayo Phoenix, so we also did a temporary move last year. A few weeks after we arrived my MELD went from 21 to 19. They did not take me off the list since the underlying numbers do fluctuate, instead they scheduled another round of labs. Sounds like they are doing the same for you?
However, before I could get the updated labwork done, I got the call to come in for transplant.
We stayed in Phoenix for another 2 months post-transplant, which worked out well because there was no way I was going to feel like packing up and doing a drive back home before then! The team there is great. Everyone is very caring ... including everyone we met on the transplant team as well as anyone we interacted while there - transplant floor nursing staff, lab staff, pharmacy, checkin, kitchen, etc. I'm almost 1-yr post now, and they are very responsive whenever I have questions or concerns. Best wishes to you!