Prolia discontinuation

This is from webMD.com

"How Long Does It Stay in Your System?
Prolia takes about 4 to 5 months to leave your system.

If you could become pregnant while on Prolia, you must use birth control during treatment and for 5 months after the last dose of Prolia. "

What to do? 10 years on Prolia, an injection Reclast, I was really sick about a month, tell the truth I thought I would not survive. 1.5 years past from Reclast, broken hand and now broken toe . Alendronate was not for me , I tried. I am very sensitive to medication because I have every minute strong head ache and other problems with my health. We live now in Florida in a small town, to do density to be coved by Medicare after 1 year-- I did a lot of research and gave all information to my endocrinologist. The same I did for reducing Reclast injection. No response. Evenity ? It is only once a month may be? Forte and Thymols every day, no chance for me.
Thanks for answers.

hi yellowbird, anyone experiencing the said to be "rare" experience of constipation with Prolia is advised to contact their physician immeditely. Prolia stays in your system 4 to 5 months. Half life is 26 days.
Did the NP prescribe the the Prolia? If there is an md involved, you might/should contact them. But you probably need a new provider.
I'd suggest a bisphosphonate to counteract any rebound from the one injection of Prolia. If you opt for Reclast make it a low dose, slow infusion. You have till June to figure all that. Meanwhile be sure to use measures such as milk of magnesia to alleviate the constipation.
And don't let this be your last comment; make it a conversation.

whiteswan, you are entering the safe zone from Prolia. It seems like the hand and toe are rebound. You had and still have some protection from the Reclast.
No response from the doctors on Reclast reduction? Sounds like you are doing your part and they are not doing theirs. Evenity can also be problematic especially with high sensitivity. I'd want to try a single injection instead of two at least for the firest month.
You might not even want to consider a second, this time reduced, dose of Reclast.
No chance of you taking Forteo or Tymlos everyday?
Tell me more.

Thank you for responding. Yes, there is a Dr involved. They are in an arthritis Clinic that Cigna insurance approved. I am seeing my Primary Dr. tomorrow morning and will share what I have learned so far. Even the paperwork that comes with Prolia says constipation is a possible side effect. Ugh!

@izard1, extreme pain in the groin can signal fracture in the hip. Call your doctor. You might request an MRI. I'd want it with contrast because hairline fractures are difficult to detect. It may not be from Prolia though atypical fractures are a Prolia risk. I don't think you should wait.

I’m not too sure you can come off of it safely. I may have Osseonectosis which is a bad side effect. I’m sitting in my rheumatologist’s office now waiting to see what my options are. I fearful of fractures and fearful of other drugs. Has anyone gotten Osseonectosis from Prolia and what did they do?

Gently, Thank you very much for your answer. Forteo , Evenity , Tymlos they all have side effect -head ache. Practically I very lucky that I can take budesonide (only 1 pill instead 3 because of osteoporosis) and I was lucky with Prolia. It is a reason why I did not read about Prolia at all, to much troubles with other problems with my health. Head ache is constant and even sneezing gives much more head ache, simply sneezing in the morning. So head ache is main trouble for me.
Osteoporosis +I see only one solution for now . Take o.5 mg Reclast and it will be once a year. I do not know where to find a code for a small doses of Reclast as windyshoes does. I checked again and again , only this: Reclast is only administered once per 12 months, therefore, only one Reclast® claim should be submitted per year.
Medicare told me that my endocrinologist MUST call them on provider line but no responce from her.

I'd want to try a single injection instead of two at least for the firest month.+++ Your words
I do not understand them, explain ,please.

The single injection would be with Evenity as one dose is two injections.
I'll mention without trying to convince you that the headaches with Tymlos and Forteo can be avoided. They are caused by vasodilation of the blood vessels. Salt before injecting to constrict the vessels as well as a glass of water to increase the fluid to expansion ratio can alleviate the headache.
You might fare better with Zometa. It is zoledronate like Reclast with different dosing parameters.
There probably isn't a code for lower dosage of Reclast. The endocrinology office has to handle this. I hope your prescriber is flexible.
@windyshores your assistance is requested

@whiteswan Reclast is an infusion. Evenity is an injection of two shots. Just to clarify for others.

Noone should take me as an example just yet. I do a low dose Reclast because of studies on afib and Reclast (I have afib) and kidney issues (GFR of 36). My doctor came up with the idea, not me. And low doses are taken more frequently, like every 3 months, though CTX testing to see if turnover is suppressed can delay them.

I have been told by MD and infusion nurse that doses of 22 mg (Full dose if 5mg) are not uncommon. I have been getting 1mg over an hours time.

I don't think you can get a dose as low as 0.5mg.

If you already have jaw necrosis (so sorry!), is any amount of Reclast safe? What does your endo say? Can you do Evenity which is a milder anti-resorptive? To help with rebound you might need a full dose of Reclast, who knows, but maybe docs will consider low dose every few months for a year, with monitoring to minimize dosage and frequency, as well as to monitor rebound, due to your jaw situation.

Tymlos would be great but I have read and been told that it is not effective right after Prolia, nor is Forteo. (See "Great Bones" by McCormick or Leder's videos on Youtube).