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Hailey-Hailey Disease

Skin Health | Last Active: Sep 3 7:58pm | Replies (169)

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@ethanmcconkey

Hi @maleahanne, welcome to Connect. As you start your research about what helps manage Hailey-Hailey and what makes outbreaks works, you'll read tips from fellow members like @danavs and @huitilin76. In fact, @dschoening also recently joined Connect and offers several things that help her manage and avoid outbreaks like loose-fitting clothes, going bra-less when possible and what deodorants might make things worse.

@dschoening did you get a new prescription from your dermatologist?

@malehanne, were you diagnosed by a dermatologist? What treatment if any was recommended?

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Replies to "Hi @maleahanne, welcome to Connect. As you start your research about what helps manage Hailey-Hailey and..."

My only comment is I am not understanding why as women when we are in so much pain we still feel the need to wear bras . I don't think I have worn a bra in almost a year. Unfortunately I do wear hoodies alot because of this disease when going out. Also because of this disease I hardly ever go out. I have scars all over me because of the lesions.