← Return to Hailey-Hailey Disease

Discussion

Hailey-Hailey Disease

Skin Health | Last Active: Sep 3 7:58pm | Replies (169)

Comment receiving replies
@jasrend

Thank you all for this page. I have HHD also, dx with it 6yrs ago and I have not gotten much relief from with meds I've been put on. Not much time in between flare ups. Went to my primary care doc 2 weeks ago and got cortisone injection and pills plus antibiotics and antifungal, it worked for the duration of the treatment and about 4days after, but flare up came right back. Im so tired of the pain, itching and smell of this disease. I have it all over my body... between my legs, under my breasts, on my neck, under my armpits, sometime under my gluteal folds, and right now on my labia and groin. I need help. I just asked my pcp to refer me to a dermatologist. Im pretty new to the area and have not established a dermatologist yet. These flare ups are making it hard for me to work..I work in pain all the time. I hope I can get some relief soon....and my poor husband is suffering too due to lack of intimacy. I am frustrated. Please pray for me. I am using clobetasol mix with mupirocin, but it doesn't seem to be helping anymore and my skin is getting very thin. I can't even cover up the rash with any kind bandaid as removing the bandaid peels my healthy skin off so I'm left to only use foam bordered dressings to cover the areas so I work with alittle relief from the pain. The foam bordered dressings are so expensive. I buy them on Amazon because the medical supply stores are outrageous with their prices. I hope the dermatologist that I will be referred to knows about this disease. I am willing to try anything at this point. I have written down all the treatments that are suggested on this page. Thank you all. I am relieved that I'm not the only one who has this diagnosis.

Jump to this post


Replies to "Thank you all for this page. I have HHD also, dx with it 6yrs ago and..."

Hi this is Dan, both of our daughters have HH and they both watch they diet. We live in Florida and it has been very hot. Each of them, like me, have had good years then very bad times when it flares up. One is 48 the other 50 years old. Definitely see your Dermatologist on a regular basis. This has been in my family for generations. My mom really didn’t even know what she had. God Bless you and I hope you get relief.