Thank you for the information, @danavs; it must be exhausting to be so careful!

Have you heard about the drug afamelanotide? Here's a paper that was published about its efficacy in treating Hailey-Hailey disease:
http://bit.ly/2fpuxmQ and http://bit.ly/2em4U5u

Although Bullous pemphigoid is different, but since Hailey-Hailey disease belongs to the 'pemphigus' autoimmune disease family, I would also like to introduce you to @earljohnson5030, and @profkatg as they have discussed their experiences with Bullous pemphigoid. Or you can view the discussion within the Autoimmune Diseases group here:
http://mayocl.in/2ema9lV

@danavs, has your dermatologist spoken to you about afamelanotide?

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