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What are treatments for myelofibrosis?

Blood Cancers & Disorders | Last Active: 7 hours ago | Replies (36)

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@cindyem

JAK2 Myelofibrosis
I have been on Ojjarra for almost three months. It is a half dose (100mg) per day. Next month I will go on a full 200mg dose and will report back.
I have not experienced any adverse effects to date. My spleen pain has gone away. My white count is now upper normal. Still waiting for my platelets to stabilize. They range from 600,000 to 900,000. Maybe the full dose will help with that.
Other than that I feel like nothings wrong. I’m still shocked that I have this disorder.
I feel confident in the hands of the Mayo Clinic expert in Primary Myelofibrosis, Dr. Teffari.

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Replies to "JAK2 Myelofibrosis I have been on Ojjarra for almost three months. It is a half dose..."

Thank you for responding so quickly. My doctor has prescribed 200 mg, because that’s the recommended dosage, but I’ve heard that upset stomach is common. Nice to hear that 100 mg is helping without side effects.