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Starting 17th year with ET. What's ahead?

Blood Cancers & Disorders | Last Active: Jan 19 4:08pm | Replies (52)

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@nohrt4me

My concern, moving into 17 years after ET started driving up my platelets, is that the phase of feeling "great" or even "pretty good for my age" feels like it's coming to a close.

I have co-morbidities, which have symptoms similar to ET (increasing fatigue, dizziness), and that makes teasing out and treating the root cause tough.

And, at 70, I get very discouraged hearing about how great others older than me are doing. My parents lived into their 80s (even my dad with ET). I have better health habits than my patents (no smoking, no alcohol abuse, no bad diet, more activity). But I feel like my quality of life is dwindling no matter how hard I try to maintain and "be positive."

So I would like to hear from folks about coping with this next phase. Right now, diving into books and knitting projects helps. But people kinda wear me out these days, especially if they want to socialize outside my peak window between 1 and 5 pm.

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Replies to "My concern, moving into 17 years after ET started driving up my platelets, is that the..."

In case misery does love company . . . I get discouraged too. There are a lot more so-so days now.

And you know what? Feeling mad and bad because we have cancer is absolutely OK!!!!

The pool at the Y is my happy place. I can't do as many laps as I used to, but being in the water relieves my headaches and breathing issues.

We have to find what works for each of us. And we have to be good to ourselves, because this ET stuff isn't easy.