Protracted Benzo withdrawal

I think that I would look upon them as a questionable sometimes necessary evil. Recent studies claim that 85% of people over 70 on a Benzo will develop a form of dementia. Not worth the risk in my thinking.

Anyone found anything that helped this brutal condition so you could have any sort of life again? I am on 8 different Benzo withdrawal sites including benzo buddies and found zero help!

I actually had this conversation with my psychiatrist this week because I've seen some of those same articles. Her wise and experienced reply was that the meds MAY cause dementia somewhere down the road but at this point, there is nothing definite and it could be just as easily dementia from genetics, old age, alcohol etc. Rather than worry and stress about what MIGHT be, I would rather live with some more mental stability in the here and now. I equate this concern to those who need a knee replacement but are only in their 50s so they plan to wait till they are in their 70s so it doesn't need to be done twice. 20 years of pain and reduced mobility vs. the unknown? Seems like a no brainer to me

Someone needs to update this, so I will. I’m suffering from severe internal vibrations stemming from essential tremor I received d/c’in benzo’s. Taken responsibly 1x/day @night, tapered over 12mths and still got hurt. Permanent tinnitus as LOUD as you can possibly imagine, for life. I shake inside from the moment I wake until the moment I fall asleep for 8mths and counting. I used to champion benzos, especially over those that self medicate with alcohol. NOPE. Benzo’s are the devil, and I NEVER abused them. Came off k pin @22mg/month avg for 6mths. Too fast in retrospect.

@kevk74 Welcome to Mayo Clinic Connect. You are having side effects from long-term use of "benzos," despite your taking them responsibly.

May I ask what kind of medication, treatment, strategy, etc. you are using now in place of "benzos?.

Hi @aarniek,
I am so sorry to hear of your troubles with Ativan and other benzo's. I can share my story to provide some hope...please don't be discouraged by anything I share. I don't know why my withdrawal was relatively easy but here goes...I was on Ativan (2-3 mg daily)and clonazepam (2 mg daily) for over a decade. It was prescribed mainly to help reduce anxiety, although my primary condition was depression. I mainly took it at night (Ativan and Clonaz together) to put me to sleep and keep me asleep. Over the 10 yrs I was also on SSRIs. In the past 4 yrs, they added Seroquel to my drug mix to stop suicidal ideation.On top of all that, I was on hydromorphone and oxy's for a chronic pain condition.
In the past 9 months, I decided it was time to try coming off of as many meds as possible-I was just so tired of feeling groggy and fuzzy and having little ability to concentrate and experiencing memory impairment. I met once with an addictions psychiatrist who designed a withdrawal schedule for me. I was too afraid to read anything on sites like benzobuddies because people had told me so many bad stories about how it might be impossible for me to come off the meds without terrible side effects. So, I guess ignorance was bliss for me-I really tried to go into the process without reading anything on it.
I decided to get as physically healthy as I could while starting to taper so I started Weight Watchers which really helped me stop eating junk food and highly processed food-I think this made a huge difference for me as I'd never really cleaned up my diet. I lost 35 lbs in the first 20 weeks and was getting lots of exercise- walking 45 minutes/day and swimming 2-3 times per week. In retrospect I think the change in diet and the exercise really helped with lessening any anxiety symptoms as I weaned off the drugs.
We started with weaning me off Seroquel and then we attacked the opiates. I weaned off the extended release opiates first and used the oxy for any breakthrough pain. Then I tapered off the oxy dosage and do not use it at all now. Amazingly it turns out that my pain is tolerable without drug intervention-I was just too stoned all those years to realize the pain wasn't so bad anymore.
Then we attacked the benzos...starting with the ativan. I tapered off over a period of approx 6 weeks, and boosted the clonazepam while withdrawing from the ativan. In the past 8 weeks I have been tapering off the Clonaz (which was bumped up to 3 mg nightly) and am now down to .75mg nightly. I just saw my psychiatrist and we've decided to stay at the .75 level until I get through our rainy winter season here-SAD is an issue for me.
But there's so much good news in all this. My energy level is good, I wake up alert most days after 8 hrs sleep, I have not had any suicidal thoughts for 2 months, no panic attacks, not clinically depressed, no longer wear plus-sized clothes :)...I'm still a bit overwhelmed by financial stresses but can at least start to problem-solve with some clarity (which had been impossible for the past decade-I would just cry when any of life's little bumps in the road occurred).
I don't know what kind of medical support you have available but I have to say that seeing an addictions psychiatrist to develop my plan was an important first step. I also suspect that changing my diet (for real) and getting more exercise played a huge part in my process.
I am mad at my previous psychiatrist (who is now retired) for never red-flagging the long-term impact of the drugs he was prescribing me, but I am so grateful to be off the Seroquel, Ativan and on the way to being off the clonazepam as well.
I still take SSRI's for the depression but am so happy to be relatively drug-free. I never would have thought I could have reached this place, so please don't give up. You will be in my prayers and thoughts.

Keep the faith I know it's tough believe me.. I'm still going through withdrawal myself & its been the toughest thing I've ever went through in my life.. I use to be a amateur & professional boxer growing up I had over 60 fights in the ring & I can say benzodiazepine withdrawal is 100% tougher than any fight I've ever been in especially going through the withdrawals I'm enduring, extremely bad tension, headaches, sweating, shaking, racing heart rate, insomnia waking up all night long you name it.. I sleep maybe 3-4hrs & its terrible hours.. So I promise you are not alone.. What kind of symptoms are you having?? & are you off all your medications?? If your only going through emotional withdrawal that is completely normal I believe that's the longest lasting part of withdrawals.. You have to do things that makes you happy & stay as busy as possible doing anything just to get your mind in a good place, dont let it get the best of you.. How long was you on benzodiazepines?? The longer & the higher dose you were on the longer the withdrawal process.. Your brain is trying to heal it's trying to function normally again.. Because long-term use of benzodiazepines causes brain damage on the GABA receptors of the brain, but in time it will heal.. All psychoactive drugs cause withdrawal but benzodiazepines are the longest lasting withdrawals by any medications out there.. It can last months or years.. Like i said it all depends on how long you've been on them & how much you were taking..