Is this age-related decline in GFR or kidney disease?
My gp says I do not have ckd. I am 73, no diabetes, no blood pressure issues. My gfr is 52 and my creatinine is 1.1. I am not overweight. He says it is due to age and we will retest in 3 monlths. I am really scared witless. His physicians assistant told me i have ckd.
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Hi,
Yes I fully understand the consequences of what I'm doing, but as Dysautonomia is progressive it really doesn't matter at what speed the progression happens. It continues unabated regardless of what the experts have tried.
My insulin pens and test strips are fully funded and do the job just fine under normal circumstances, but I'm way past normal.
The Dysautonomia is slowing my digestion to the point where I struggle to get enough food and fluid in daily. It interferes with my bowels, bladder and causes problems with the throat. It is the nerves associated with these actions that are corrupted. That corruption is not treatable or curable. The nerves are the connection between the brain and the muscles which are normally instructed to do the work, yet don't do the work very well for me. I/we cannot replace the nerves therefore cannot correct the problem. No amount of intervention will change that. My other health issues come a distant second to this. My only options are; slow the progression or let nature take it's course.
Last resort, I have opted to let nature take it's course, unaided.
Thanks for the concern.
Cheers
If your GP and his assistant tell you contradictory things, if I were you I would go to a different doc! You might simply be dehydrated when you had the blood / urine test but it is worth retesting. I have my eGFR tested every 3 months (I buy the test from Quest or LabCorp online).
Hi,
Possible you may be correct, but as long as a question is asked of me here this is where it should be answered. Yes I know it goes off topic, I'm acutely aware of that, but it is out of my control and has snowballed.
Do I rudely ignore the questions, answer with a complete response or point out that questions here off topic are frowned on?
I await instruction.
Cheers
@cheyne I can certainly understand wanting to answer a question posed to you. However, when the ensuing responses run astray of the main topic of the discussion and there is another [existing] exchange going on, you can always move your replies over there.
As I mentioned before, there are members following the diabetes support group who may have valuable words to share. They won't be looking for entries in the kidney and bladder group.
Ginger
The concerns about @cheyne do not seem to pertain to diabetes, and seemed dire enough to respond to here. In my experience threads do tend to wander from the original post. I will refrain from further discussion on this off topic issue.
I have been advised by my doc to come in at the end of January to be retested. and he told me to rehydrate well before the new test. While the pa may be technically correct, it is worth reexamining.
Thank you for your reply.
@mimi1234 Another reason to hydrate well the day before a blooddraw, and the day of, is the fact it makes the draw itself easier for the technicians. If you fast before the draw, remember you can still drink water!
Ginger
Yes! My gp reminded me to fast but continue to drink water before coming in. I have actually been drinking 24-32 ounces of water daily since October and discontinued taking aspirin which is really bad for kidneys. Who knew??
As for the discrepancy between the PA and my doctor, I can see both ways. The problem of course is that one test isn't enough for a diagnosis, AND there is great controversy in the medical community (according to published studies) that the threshold of 60 gfr may indeed be too high for people over 70.
More and more gp's are not so fast to diagnose CKD based solely on gfr (according to published medical journals. Especially in those who have no bp issues or no diabetes.
Anyway, thanks to everyone here, I see that the probable treatment will be what I am already doing , exercise and diet.
I am not inclined to get a new doctor and start the whole process all over. We have a lot of doctors here in the area, but not easy to find one who is close by, takes Medicare, and takes new patients.
If I am referred to a nephrologist I will definitely go. I appreciate all of the supportive comments I have received.
Again, the Cystatin C version of the GFR is more accurate according to my nephrologist. My doc averages that and the usual creatinine based one. I think doctors worry less when our GFR in the 50's, remains stable!
I hate drinking water. It makes me have nausea. Folks on here are inspiring. I try to put some juice in to make it more palatable. Tea and seltzer help.
@windyshores Not liking water is something many of us deal with. It can be just so "blah", right? I like to add a packet of True Lemon, True Lime, or True Orange, to rev up the taste. They are a crystallized powder, available on Amazon at least. I ran it past my renal dietician and she okayed it. The packet contains the version of a slice of squeezed citrus fruit. Very refreshing n a cold glass of water with ice!
Ginger