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Any help for caring for husband w/Leukemia & Parkinson’s?
Caregivers | Last Active: 5 hours ago | Replies (22)Comment receiving replies
Looking back on the events that have shaped your life and that of your husband, it shows the level of resilience and tenacity you posses to keep on pushing through during even the most trying of times! I bet opening up, letting your story pour out in ‘print’ feels really cathartic.
You are a natural caregiver! However I can sense this latest chapter with your husband’s cancer and bone marrow transplant is taking its toll. He may feel this isn’t any big deal but then again, he’s not being compliant with the protocol set up by his BMT team. He’s not taking meds on time and that’s creating some serious gvhd issues that may have been avoided. This, in turn, is creating turmoil for you as you try to keep him healthy. He may not want to visit with a counselor but it would be quite helpful at some point to let his team know that his isn’t taking his meds on time. You shouldn’t have to be making these adjustments for him. There are reasons for the protocol and consistency in medications, especially the anti-rejection meds is crucial to his health and ultimately yours (mentally and physically).
You’re doing an amazing job. I know being a caregiver for a BMT patient isn’t easy and your husband is making this extra hard on you. You’re a trooper, m’dear!
So keep on typing here, I think this is helpful for you!
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Thank you! I have been talking to his team, both initial BMT & also the LTFU (long term follow up) team. The thing that frustrates me is that they….talk on the side of caution, I understand that they need the patient to have a positive attitude…what makes it hard for us as caregivers to have a sudden bomb dropped on us….I’ve learned this through the situation with my husband…I feel that there will be another bomb dropped suddenly (in my gut) 😣
Continuing my journey:
So…we moved into our new home, two young teenagers, my dad & us. I still had to take the kids to school, go to work & pick them up…Doable! My dad was still able to drive, he met a “lady friend “ so life was ok. Still taught the kids to drive, they went to college etc…
Fast forward to 2012.
Son got married & the day after their wedding my dad was at his lady friends house, helping her in the yard & he collapsed. She called me, told me what happened & I drove out to them (25min?) she also called 911 & paramedics were there when I got there & they highly recommended he be taken to the ER….
Bomb drop, my dad needed a quadruple bypass!
This does help me, writing this all out 🙏
Right now I need to attend to our son’s dog that’s 14 yrs old, partially blind, mostly deaf & has an inoperable tumor in her abdomen while he’s out of town. His wife is a school teacher (2nd grade) & they have two other full size Aussie’s. I can’t take care of all of them & my husband…wish I could. So the 14 yr old mini Aussie that basically grew up here is in my care for a week. She has to be taken out every 3-4 hrs 24/7. Talk about getting sleep deprived…but I do what is helpful for the ones I love. Now I need to put eye drops in his eyes again & figure out what to throw together for dinner…..hmmmm.