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Starting 17th year with ET. What's ahead?

Blood Cancers & Disorders | Last Active: Jan 19 4:08pm | Replies (52)
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@eloise999

That is reassuring. I am still waiting for my genetic testing results but hematologist very sure I have ET. The dizziness is hard to adapt to I am a bit cautious because I don’t want to fall.

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Replies to "That is reassuring. I am still waiting for my genetic testing results but hematologist very sure..."
bshattuck138 | @bshattuck138 | Jan 12 9:38am

Good luck with it all. I wonder if the dizziness could be from something else. Hydrea seems to affect people differently. Hopefully your docs can help the dizziness to keep you on your bike.

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janemc | @janemc | Jan 13 5:26pm

Dizziness / light-headedness can be symptoms of ET itself.
You're smart to take it slow and easy so you stay upright!

If your hematologist prescribes HU for you, once it brings down your platelet count, you'll get some relief from your ET symptoms.

This doesn't happen overnight but it's encouraging!

I got a lot of energy back once HU lowered my count from the upper 700s to the lower 500s.

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